Vulvar Cancer: Anyone else?

Yes, it was vulvar cancer. I had chemo and 35 radiation treatments. I also had a vulvectomy a year and a half after finishing my treatment. I found another lump, which was only scar tissue. My onc/gyn did a vulvectomy as a precaution. This is more than likely why I still get occasional itching and irritation. I have started using Vagisil ointment and ph balanced wipes. It is helping a lot.
Ask your radiologist what they would suggest. They will know what is the best thing to use.
The best of luck with your upcoming tests, they are always a little nerve wracking 🤞.

Yes, it was vulvar cancer. I had chemo and 35 radiation treatments. I also had a vulvectomy a year and a half after finishing my treatment. I found another lump, which was only scar tissue. My onc/gyn did a vulvectomy as a precaution. This is more than likely why I still get occasional itching and irritation. I have started using Vagisil ointment and ph balanced wipes. It is helping a lot.
Ask your radiologist what they would suggest. They will know what is the best thing to use.
The best of luck with your upcoming tests, they are always a little nerve wracking 🤞.

Does scar tissue cause itchiness & soreness or was it the vulvectomy?

It may depend on whether or not you had an underlying condition such as lichen's schlerosis as to the effect of itchiness & soreness. Here's a couple of practical hints that helped me. Switch your underwear to 100% cotton boy-shorts for a while. No elastic leg openings or nylon to rub against that sensitive area. Don't wear jeans or pants with thick, or abrasive center seams more often than necessary. If you do, get a period pad to wear to cushion your "tender area". After you go to the bathroom, sit on the edge of the tub and use the hand shower for a warm rinse. Sit on a towel to pat dry. Use gold bond or medical powder to keep the area dry. If your skin is tight with scarring, use a scar reducing scream to soften the scar - which should cut down on pain and itching. Finally, get some anti-itch spray for sunburns and use that if the itching gets too bad. Steroid creams can sometimes be useful but talk to your doctor only if these other things don't work. I've been there - good luck!

Thank you for your help. Yes my vulvar cancer was a result of having lichen sclerosis which I had for years not knowing! I only wear cotton underwear. I have boy shorts also. Have only been wearing loose sweat pants, no leggings!
My groin area is very dry & itchy. I’ve tried everything from vulvar cream, cortisone cream, barrier cream, aquaphor & Vagisil. Vagisil helps & calms the itching down but not sure if this is the thing to use!
The itchy soreness has come & go the whole time!
Come August I will be 2 years past finishing radiation. Is this the new normal for me? The doctors don’t really tell you what to expect after treatment is over. (Side effects)
Your thought & suggestions again would be greatly appreciated!!

Does anyone have any suggestions to relieve itchiness & soreness?
My area where the sun doesn’t shine has never been the same after radiation for vulvar cancer.
Is this the new normal?

I have had this now for almost 5 years. The itching and soreness is always there, but sometimes better. My doctor gave me Clobatasol and that helps. My last treatment was Imiquimod, which was not pleasant but it seems to have helped. I hate to be the bearer of bad news, but nothing will totally take this away. You didn't mention your age. But, I hope for your sake that no one is pushing you for sex. It would definitely make it worse. Good luck on your journey. Let me know if I can help.