Meningioma invading the superior sagittal venous sinus: Next steps?

I hope your appointment with the neurosurgeon is sooner than later. For me, the most difficult part, after finding out I had a meningioma in a challenging location, was waiting to see the doctor and getting his opinion about whether I should have radiation or a craniotomy. Once I had a definitive plan my stress level went way down. And for me, it took a second opinion to get there. There are many informative posts from those of us who have already been through this on the Mayo forum and I invite you to scroll through them all. Reading the posts will help you better understand what lies ahead and will help you formulate the questions you should be asking the neurosurgeon.

I too have a tumor invading my straight sinus. In 2002 I had a crainotomy to excise a tumor. At that point they surgeon could not get a fraction of the tumor that was pressing on the straight sinus. I was told the tumor was slow growing and would not come back. In 2019 I started to get very bad headaches with a sensation my eye was pulling to the right. At the end of 2000 I began seeing the team at Mayo. The current status of the tumor is inoperable because its placement is too dangerous for radiographic or surgical treatment. The pressure on the vein causes issues with the flow of my CSF, which in turn gives me headaches. Loud noises, lots of stimulation, and bright lights bother me.
Work with the team at Mayo to find the best fit of doctors for your needs. If I can be of any further help I would be happy to share my experiences with you and/or others.

Thank you. I will definitely will scroll through the post. I went to the Neurosurgeon when I was told what I havem but to be honest did not think about the meningioma to much to even ask the right or any question for that matter. As the time is progressing I have been having more headaches than normal, but unfortunately having headaches is normal for me( it should not but it is), now I am investigating more about it and I have another MRI next week since my headaches are stronger and doctor wants to see what is going on or see how much is has grown. I have good family support but at the same token do not want to worry them more than they need to, so I am trying to be positive, and praying that I am able to feel at little bit more calm once I start reading post. Any key questions I should ask the Neurosurgeon?

Hello, that is probably why I am so worry that the doctors could not do anything about it, but I have to see what my MRI results are and go from there. Is there any key questions I should ask? The sunlight and high pitch noises is been bothering me recently, which is very new for me, I am trying to keep a record of every symptom and trigger as I can remember and meds that I am taking just in case. It is so hard for me to understand the reason why I have a Meningioma, and hope and pray I will be able to be more at peace once I start to understand and educate myself about it.
Thank you

What is your experience performing this type of surgery?
How many patients have you treated with this condition?
How long will the surgery take?
Where will the incision be, and how will it be closed?
Will I be awake or asleep during the procedure?
What specialists will be part of the surgical team?
What other specialists will be involved in my post-operative care?
3. Recovery and Follow-up:
How long will I be in the hospital after surgery?
What is the expected timeline for recovery and returning to normal activities?
Will I need physical therapy or other rehabilitation?
What are the possible long-term effects of surgery?
Write down your notes.

Keeping a daily log of your symptoms and triggers is a good idea. Think about your senses. For example, I was able to determine that salt in food was a trigger. Now I avoid anything over a certain salt content. Are their times of day where your symptoms are worse? Does it matter if you sleep with one or more elevated with two pillows?

Bring the log when you meet with the doctors? Is your MRI scheduled in the near future? Are you going to a major hospital with the newest MRI machines (the technology makes a big difference when it comes to diagnosis).

Waiting and not knowing is the scary part. In terms of why you or anyone else develops a meningioma there still no solid evidence. You can read the latest literature to help you get a persoective.

I am here for you.

Thank you for all the good information and I am having my MRI at the Medical Center, Houston, next week, so will see what the results will be. unfortunately the waiting game is the worst part, but I am thankful that I was able to find this Forum here and reading them have make me feel that I am not the only one with a meningioma.
Thank you 🙂

Feel free to check back in after you have your MRI. Best of luck.

Good morning ,
Had my MRI done just waiting on the official report from the neurosurgeon. Question a meningioma can cause a hemorrhage?( this is what my report said) "Small subdural hemorrhage, likely late subacute, overlying the right cerebral convexity and right cerebellar hemisphere". I am feeling good, nothing has changed for me other that headache still there. I am bit worry and anxious especially that is holiday weekend till the doctors go back to work.

If you lay low this weekend and don't do anything too physical that would be smart. Just try to read a book, watch television (preferably non-action or non-violence), or listen to some calming music. Do whatever you do that lets you relax. Tomorrow you can contact the neurosurgeon to have your questions answered. In this case worrying doesn't help. Information is what will let you know what you need to do and how to prepare yourself.