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PMR with hand/wrist pain and swollen veins?

Polymyalgia Rheumatica (PMR) | Last Active: May 16 4:33pm | Replies (45)
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@katiepea

So glad and reassured to read this . My right wrist aches and you can see the veins pulsating and I have come to realise it’s each time when I drop down 1mg of prednisolone , so I go back up
To my previous dose and it’s ok . I leave it for a few more weeks then try again . I find all this quite scary at times. Feel so alone here in the UK . I was diagnosed in October 2024 the first two months I saw the doctor who spotted the absolutely painful
State I was in ever 4eeeks? Since then I haven’t seen a doctor at all, I have tried but it’s a nightmare here in the Uk . My vocal cords are affected too Please has anyone had that too ? Did finally see a doctor in January who’d referred me to an ENT specialist … still waiting for that appointment .

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Replies to "So glad and reassured to read this . My right wrist aches and you can see..."
ropnrose | @ropnrose | May 15 9:20am

I began taking Prednisone in July 2024 for PMR/GCA. 60 mg. for 6 weeks. My voice was affected. I don't know if it was the Prednisone or the disease. Once, I tapered down to lower dosages, the voice issue went away. During those 6 weeks, I also had chest pain and a dry cough. Those eventually went away, too. I really think it was the Prednisone. It's the drug that keeps giving (although you don't want what it gives you). At 60 mg. I had no body ache (other than an occasional headache). I'm down to 6 mg. now (thanks to monthly Actemra infusions). I had wrist, shoulder and knee aches prior to Actemra. The aches would usually subside by mid day. They weren't dibilitating. I still have very mild wrist aches, but it's barely noticeable

Good luck with your journey.

What doseage of Prednisone are you taking?

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