4 days after vaccine I got very ill and haven’t been the same. Symptoms are multi systemic. Vertigo, dizziness, blurred vision, tinnitus, tremor down torso, arms and legs, aphasia, difficulty speaking, forming sentences, losing train of thought, detachment from reality(I don’t know the right word to describe this sensation. It felt like I was rocking back and forth but I wasn’t. It was all on the inside. Fatigue like I’ve never felt, I would crash with a he’s fullness sensation with severe tinnitus and body tingling/numbing. I broke out into rashes that came and went on parts of my body neck chest and face. I suddenly had difficulty walking and even on a slight incline. The week before I had been working out at orange theory and going for 10 km runs with my husband?! Told to get the second shot and 24 hours later I’m in an ambulance with heart pain/ severe cramping and sweating. I was finally dx with MECFS; MCAS; Dysautonomia; after 2 years Positive ANA for Sjogren’s and Lupus Anticoagulant. After another year, confirmed dx of Lupus SLE. I had to manipulate my way into the Long Covid Clinic because I never had Covid only the vaccine. No one wanted to even document that the vaccine triggered my illness even tho it was obvious it did. My GP literally told me he could get fired if he documented on my chart that the vaccine caused my illness. So because of physicians fear for their jobs it’s been a challenge to even apply for vaccine injury compensation. I worked as a counsellor in a cancer centre- Patient and Family Counselling and I’m too sick to work in my career that I loved and too sick to work in any capacity. I don’t believe I’m going to live a long life based on how I feel on a daily basis. I have ongoing weird symptoms that migrate around my body and brain. My short term memory is not good, my concentration and brain fog are a challenge. Itchy shins swollen glands in my neck on a daily basis. Waking up with an internal tremor that feels terrible. Daily crashes and I wake up with stiff arms and hand always on my chest with the tremor tinnitus and head fullness sensation. I don’t know but I wonder if I’m having seizures and not know it. My muscles spasm. It’s very difficult to describe. It’s a very isolating feeling because doctors look at you like you have two heads. I feel gaslit most of the time. I woke up a year ago and stood up out of bed only to find my legs were heavy, couldn’t move them at first, like thy er encased in cement. This lasted a week and improved. Had also noticed leg and arm weakness at the same time. Falling for no reason. Neurologist took me off amitryptaline and within two weeks my legs and weakness improved but that’s when the pain began. I had been on amytriptaline for migraine pain years before the shot. I had migrating joint and muscle pain all over. Ankles, knees, elbows, but also muscles in forearms and legs. Hair had been falling out, lost 20 pounds overnight, my muscles looked like they were wasting suddenly. That’s when I pushed to see a second Rhumatologist who sent me for the right tests and these tests showed I have Lupus SLE. Likely brought on by the vaccines. Now on Plaquenal but it doesn’t help with my symptoms and pain. This is a chronic illness that only seems to get worse as time goes by tho I’m able to talk much better now. My leg weakness is much better. This Illness isn’t long covid because I never had covid. It’s from the vaccine. Unfortunately after working in healthcare for 23 years, I have lost my faith in the medical community because they were too afraid to investigate and speak up. The gaslighting and this lack of support is what hurts more than my illness. I also know that as long as this goes on there will never be a cure or even a name for my illness. Spending the rest of my life feeling so sick is horrifying. I used to co- facilitate a brain tumour support group and I would like to do the same for the vaccine injured. We don’t have long covid we have long vax. We are different and have been treated differently in that we have been ignored. I hope as time goes by, more healthcare practitioners and scientists will be interested in acknowledging and studying the vaccine side effects and injured so there can be a cure!! I would love to feel well again and have my life back ❤️