1. < Polymyalgia Rheumatica (PMR)

PMR/GCA

Posted by docm @docmeehan, May 8 6:19am

Hello everyone, I am dealing with PMR/GCA and have experienced some brief episodes of double vision which my Ophthamologist says are inconsequential. I am slowly tapering the prednisone according to my own schedule. My question is have any of you ever actually experienced a stroke or heart attack related to your PMR/GCA? I'm just curious. I have been dealing with this disease for eight months and I really feel for those of you who have been at it for even longer than that.

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Mentor
John, Volunteer Mentor | @johnbishop | May 8 7:43am

I'm not a doctor but I think anytime you have PMR/GCA and you have something happening with your vision or eyesight you need to contact your rheumatologist or doctor immediately. It's nothing to play around with as you can lose your vision totally. Here's more information - https://www.aafp.org/pubs/afp/issues/2006/1101/p1557.html.

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docm | @docmeehan | May 14 6:31am
In reply to @johnbishop "I'm not a doctor but I think anytime you have PMR/GCA and you have something happening..." + (show)
@johnbishop

I'm not a doctor but I think anytime you have PMR/GCA and you have something happening with your vision or eyesight you need to contact your rheumatologist or doctor immediately. It's nothing to play around with as you can lose your vision totally. Here's more information - https://www.aafp.org/pubs/afp/issues/2006/1101/p1557.html.

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Thank you for your reply, @johnbishop. I agree about staying on top of my situation and I am monitoring things with my PCP and my Ophthalmologist. I'm just curious about the actual chances of developing a stroke, heart attack or even blindness and I would like hear from people who have experienced these events. My sympathies are with all of you experiencing this insidious disorder! It ain't fun!

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Mentor
John, Volunteer Mentor | @johnbishop | May 14 7:14am
In reply to @docmeehan "Thank you for your reply, @johnbishop. I agree about staying on top of my situation and..." + (show)
@docmeehan

Thank you for your reply, @johnbishop. I agree about staying on top of my situation and I am monitoring things with my PCP and my Ophthalmologist. I'm just curious about the actual chances of developing a stroke, heart attack or even blindness and I would like hear from people who have experienced these events. My sympathies are with all of you experiencing this insidious disorder! It ain't fun!

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Hi @docmeehan, You might find it helpful to scan through the search results for other discussions and comments from members who have experience with GCA and vision problems. Here's a search link that lists the discussions and comments - https://connect.mayoclinic.org/search/?search=GCA+and+vision+

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