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DiscussionSide Effects starting on Camzyos
Hypertrophic Cardiomyopathy (HCM) | Last Active: 3 days ago | Replies (13)Comment receiving replies
Replies to "I did call them, and he seemed to accept my side effects, but it's been quite..."
@marigold13 I am so sorry you are going through this. I am one week into Camzyos (took my 8th pill today) and have not experienced anything like you’re describing, but was told by my cardiologist if SOB appears I have to let them know immediately as it’s a sign of the drug having an adverse effect on you which can lead to all sorts of things. I am no doctor, but I feel that even the doctors don’t exactly understand how we feel and if you feel worse (as you’ve said you’ve never had SOB while idle) then you should make it a point to report that to them again. Maybe your dosage is too high or maybe it interacts with what you’re already taking (I don’t know if you are taking anything. I am on beta blockers 5mg + Camzyos).