← Return to Side Effects starting on Camzyos

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@marigold13

I did call them, and he seemed to accept my side effects, but it's been quite overpowering and the shortness of breath even while laying down, continuously going on while doing nothing, is concerning. The worst of it seems to hit me about 4 hours strongest after I take it, the dizzy/woozy, SOB somewhat comes in spurts, but then later when these effects wear off, the SOB lingers. I woke up SOB and decided not to take it today, and I will call them again. I've been housebound since starting. We were all going to do to the nursery to buy some rose plants on Mother's Day but I couldn't. The only time I feel SOB prior to Camzyos is upon exertion. Like vacuuming or stairs. But this kind of SOB while doing nothing is new. I feel like I can't keep at it. I don't have any chest pains. Never have. Thank you for the reply.

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Replies to "I did call them, and he seemed to accept my side effects, but it's been quite..."

@marigold13 I am so sorry you are going through this. I am one week into Camzyos (took my 8th pill today) and have not experienced anything like you’re describing, but was told by my cardiologist if SOB appears I have to let them know immediately as it’s a sign of the drug having an adverse effect on you which can lead to all sorts of things. I am no doctor, but I feel that even the doctors don’t exactly understand how we feel and if you feel worse (as you’ve said you’ve never had SOB while idle) then you should make it a point to report that to them again. Maybe your dosage is too high or maybe it interacts with what you’re already taking (I don’t know if you are taking anything. I am on beta blockers 5mg + Camzyos).