When to accept permanent long covid?

Posted by gregorb @gregorb, May 8 12:33pm

Had Long Covid for 11 months. Is there still a chance it could go away or is it time to accept as permanent. Have heard give it anywhere from 1 to 2 years. Any feedback on that?

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@gregorb

Took the 5 days of Paxlovid to stay out of the hospital. That decision ruined my life. I do understand that it did save others. I got the Paxlovid rebound case. 25% chance they said. Should have known better with me. 2 covid cases in ten days. Then the journey to long covid. Not terrible symptoms, and mostly functional, but still a battle for 11 months now.

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Sorry that happened. I have always worried about how quickly the "powers that be" came up with the vaccine, etc. I did not take the vaccine and I know that people that did take it, some, still have gotten Long COVID. Very glad to hear you are mostly functional. I think that the inflammation is a major factor in this. I am not sure what to do about that. Anti-inflammatories? Steroids? I am planning on seeing my primary care doctor again, soon. I don't know what she will suggest. I feel like a piece of crap this morning.

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@bmd

I’m 3 years+ long covid and still experiencing the same neurological symptoms I developed after my first covid infection in 2/22. I’ve since had three more, none of which could be described as mild, in 3/23, 2/24, 3/25.
My symptoms of head vibrations, rumbling and feeling ‘full’ never go away, but headaches are better. Diffuse body pain is awful, especially in the early morning hours before daybreak, and this is a more recent symptom.Fatigue comes and goes, often with no prior physical exertion. I have fallen asleep out to dinner with friends several times. Could not keep my eyes open. I have accepted that I will have these symptoms for the rest of my life- and maybe in the one beyond as well! But I do hope those of you reading this will be lucky, and your symptoms will eventually abate. Good luck, all.

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So sorry to hear your condition. Thank you for your wishes of good luck. Wishing you the best as well. Don't give up. Keep educating yourself and hope for the best. This discussion group provides support and helpful info.

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@diverdown1

Sorry that happened. I have always worried about how quickly the "powers that be" came up with the vaccine, etc. I did not take the vaccine and I know that people that did take it, some, still have gotten Long COVID. Very glad to hear you are mostly functional. I think that the inflammation is a major factor in this. I am not sure what to do about that. Anti-inflammatories? Steroids? I am planning on seeing my primary care doctor again, soon. I don't know what she will suggest. I feel like a piece of crap this morning.

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Thank you. I think it's the inflammation that does the most damage as per many articles I've read. Sorry. Mornings tough for me too. Feel better and good luck.

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@gregorb

So sorry to hear your condition. Thank you for your wishes of good luck. Wishing you the best as well. Don't give up. Keep educating yourself and hope for the best. This discussion group provides support and helpful info.

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Yes it’s a very supportive group. I consider myself one of the lucky ones because I am able to function. There are many people suffering far greater, debilitating conditions. My heart goes out to all. Thank you for your kind reply. 🙂

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Contracted Covid pneumonia at the very beginning of it entering this country. Have dealt with symptoms for over five years greatly complicated by a simultaneously diagnosed incurable blood cancer requiring phlebotomy. Unfortunately, both conditions have some of the same symptoms of extreme fatigue, breathlessness, body pain, etc. My wonderful Primary Care Dr. is the first and only doctor to say, "I believe you will be living with these for the rest of your life." All other doctors, including my oncologist, are unhelpful about Long Covid. Doctors never learned anything about Covid in medical school, so are reluctant to offer opinions. Have had heart and lungs tested by four specialists who claim heart and lungs are "fine." HA! IF only I felt as "fine" as those organs seem to be. Yes, it appears some of use will never feel much better, so must adjust life accordingly. Post exertional malaise is HORRENDOUS! 'Nuff said and hugs to you all.

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@donnie46

Contracted Covid pneumonia at the very beginning of it entering this country. Have dealt with symptoms for over five years greatly complicated by a simultaneously diagnosed incurable blood cancer requiring phlebotomy. Unfortunately, both conditions have some of the same symptoms of extreme fatigue, breathlessness, body pain, etc. My wonderful Primary Care Dr. is the first and only doctor to say, "I believe you will be living with these for the rest of your life." All other doctors, including my oncologist, are unhelpful about Long Covid. Doctors never learned anything about Covid in medical school, so are reluctant to offer opinions. Have had heart and lungs tested by four specialists who claim heart and lungs are "fine." HA! IF only I felt as "fine" as those organs seem to be. Yes, it appears some of use will never feel much better, so must adjust life accordingly. Post exertional malaise is HORRENDOUS! 'Nuff said and hugs to you all.

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Donnie46
So sorry to hear your story. Glad your primary care doc is in your corner. You have gone through way too much. Very best wishes to you going forward. Keep hoping and remember this support group.

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@gregorb

So sorry to hear your condition. Thank you for your wishes of good luck. Wishing you the best as well. Don't give up. Keep educating yourself and hope for the best. This discussion group provides support and helpful info.

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Please, first and foremost we must always remember to support one another. The people here are wonderful about doing that. Best wishes and good luck to everyone.

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CFS lasted for 4 years before I felt like my old self again. For my daughter, it lasted 18 years and she has not had a repeat.

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@joanland

CFS lasted for 4 years before I felt like my old self again. For my daughter, it lasted 18 years and she has not had a repeat.

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Joanland
Good to hear you beat it. 18 years is just unreal, but so glad you are both well now. Best wishes.

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5 years for me and I have accepted that it is permanent. I hope that you will recover.

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