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Post-treatment follow up for clear cell endometrial cancer
Gynecologic Cancers | Last Active: 21 hours ago | Replies (41)Comment receiving replies
Sadly i think those thoughts are with us for life! I didnt have any pain before now i do and thats what rattles me as Dr Sangah said any Pain let us know .... but how do i work out what is "pain" from "pain" i have had a huge surgery and i am very active again with parts missing sent into Menopause without any warning , how do i differentiate what "is" what from the "other" .... then i get myself into a tizz-woz thinking i am done for! Just a horrible thought and why us?
Its the mental damage too not just the Cancer or the Operations , i feel like i have had my brain removed too! I have a very demanding career i am back at work and currently working now but dropped on as i seen an email saying i had a response. I now sit at my desk and completly forget what i am doing! I have a family too my daughters 16 and Son 10 , they will need to be tested for this gene too , i sit and wonder if i have gave them the "penalty" now too! This came from my Grandfather , he died at 35 but the research wasnt around then and my mum was 1 years old, so i never knew him. Then my Mum 16 years ago had Uterine Cancer , removed and Mum is still here and turns 70 in June , then it was my turn , im 40 and mine was Clear Cell .... i want to and WILL get to 70 , im going to keep at my fitness and diet and just have to embrace the pain in the process as i want to see my family grow up and retire with my Partner and have a nice life. I wish you all the best , may i ask how long you have been clear? x
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@corinne1985 My surgery (radical hysterectomy) was in 2019. Whenever I felt something a little different or said aloud to my partner that I worried about another cancer or recurrence he said my "cure" rate was very high (at 95%) and not to worry. He's a pathologist (now retired) and knows very well what endometrial cancer looks like under the microscope and the statistics associated with it. I had a recurrence in 2021. It was found during a pelvic exam as a little tiny polyp on my vaginal cuff. So, I did not have any symptoms and all my worry about those pains here and there turned out to be arthritis or injuries from activities that I do. My partner was very surprised by this recurrence and since then whenever I mention a pain and worry about cancer he doesn't say anything.
I have come to this conclusion. Some people worry about new cancers or recurrences and some do not. Some of us are in the middle of that and worry on some days and not others. I know that I am an anxious individual. Anxiety has been with me all my life and while I have learned coping skills that facilitate a better quality of life for myself I figure that it's that underlying anxiety that feeds my worry about cancer.
Like you I continue to work toward fitness and diet. When new pains arise I ask myself whether this is something to bring attention to with my doctor. I do try not to worry aloud around my partner or others.
I've been NED (no evidence of disease) since 2021. I keep up with all of my cancer surveillance appointments and tell myself that if something shows up it will be detected at one of my appointments. Worry in between these appointments does not give me better health or outcomes. Some days this is easier to do than others.
You have been through so much with your diagnoses, surgery, and treatments. Keep doing what you are doing and please do ask your doctors questions and ask for what you need. I wish you Hope (optimism with a plan) every day.