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Update: Lutethera treatment is over
Neuroendocrine Tumors (NETs) | Last Active: 4 days ago | Replies (35)Comment receiving replies
Hello @zacharycat and welcome to Mayo Connect. I see that you have been on this NETs journey for a while now and various surgeries and treatments have been tried.
You said that you would be meeting with your doctors on Thursday. @tomrennie made a good suggestion about bringing a list of questions and concerns with you to the appointment and keeping an open mind and listening. As these appointments can be stressful, I'm wondering if there is a family member or friend who could accompany you to that appointment? It really can help to have an extra set of ears to hear what is being said and someone to take notes on the doctors' comments and suggestions. If there are specific questions you have regarding a scan or report that you have read, feel free to bring that with you and note your questions.
How are you feeling now? Do you have an appetite, are you able to eat comfortably? Any blood sugar problems related to the surgeries on the pancreas?
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Having someone to accompany on appointments is a VG idea. I have such a friend, a retired nurse, who has been extremely helpful both on appointments and hospital stays. She has health problems of her own now, as well as a sick family member to care for so I don't want her to do too much.
Feeling now is not too bad. Good appetite, can eat what I want but avoid alcohol. Took a short bike ride, pretty much the highlight of the day. tried a longer ride Sun but that wasn't so good. Fatigue and maybe a bit of low blood sugar. First appointment tomorrow is endocrinology so I can hopefully get workable monitoring of that.