Connect
Non Hodgkin's Lymphoma- Watch & Wait Approach
I would like to meet others who were diagnosed with a lymphoma and are on watch and wait treatment.
I have been on a watch and wait lymphoma watch now for 2 1/2 years. I currently get blood work done every 6 months and a CT Scan once a year.
Has or is anyone else having the cancer monitored like this? Are there people who lived their whole life without ever getting treated for lymphoma?
Would love if we could share our progress on here.
Jackie
Like
Helpful
HugInterested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.
Connect
I am on the watch and wait program too. Have been for 2 years. I've had 10 iron infusions because I have anemia along with the Lymphoma. The infusions did nothing. My hemoglobin goes up and down. It was 8.6 and now its 9. Still low but just living wit it.
-
Like -
Helpful -
Hug
2 ReactionsI was diagnosed with stage 1 follicular NHL when I found an enlarged inquinal lymph node. Had it biopsed and had a PET scan done. The scan indicated that the cancer was nowhere else but that node. I also had a bone marrow biopsy followed by 13 radiation treatments. Follow up PET SCAN showed no cancer after radiation. I have been on watch and wait since. See oncologist and get blood work every 6 mths and things have been stable. About 8 mths ago I had blood work which showed abnormal M protein of .7 . Two subsequent blood test every 3 mths has shown no change. So I have the trifecta of watch and waits as I also have a heart aneurysm found in 2014 that they check annually. Fortunately none of these three have affected my life much, outside of being a bit more tired and achy then I would like. Some day the shoe will drop but I dont concern myself about it the Dr says when it does we have treatments available. Good luck and watch and wait isnt uncommon