Propofol for bone marrow biopsy
Hi I have a probable diagnosis of PV. I will most likely need a bone marrow biopsy but will not consent unless I am asleep. Does the May Clinic offer Propofol at all their campuses? I will pay out of pocket and travel anywhere. I was considering visiting the clinic in Arizona. I do not want to be awake at all. Does anyone know where I can find a list of centers who use Propofol?
Interested in more discussions like this? Go to the Blood Cancers & Disorders Support Group.
You have some big decisions coming up regarding your BMT. It’s very important that you feel a connection with the BMT doctor and team. They will be integral figures in your life through all phases of the transplant and recovery.
There will also be frequent trips to the clinic for follow-ups so convenience is also a consideration.
There’s a growing membership of BMT recipients in the forum. We are all very supportive and here to offer advice, suggestions, encouragment and of course, hope to anyone who is facing a bone marrow transplant. So when you’re ready, here are a couple of current discussions that might be helpful as you prepare.
My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
https://connect.mayoclinic.org/discussion/my-bone-marrow-transplant-bmt-story-will-you-share-yours/
Husband with AML facing a stem cell transplant https://connect.mayoclinic.org/discussion/husband-facing-a-stem-cell-transplant/
Do you have any specific questions at this time?
Thanks so much for your wisdom and experience. I start outpatient chemo this week. 14 days of Venclexta pill daily then 2 weeks off. And just 5 days tues thru sat per month of SubQ Vidaza with rest the other 3 weeks.
In process of switching my care to Local Vassar/DYson Cancer center which is 15 min from my house/work and great team.
Also, in process of changing my BMT team from Mt. Sinai (NY City) to Memorial Sloan Kettering also NYC - same travel (3 hrs each way) and MSKCC has such a great reputation.
Now seems like the time to make my care changes!.
Got a great local Doc handling Pain meds and Nausea/vomiting (Palliative) for which I have many allergies)compazine,Reglan, Droperidol, Tigan...ugh) ( Zofran in-effective) Phenergan suppositories works and IV Benadryl when inpatient for the strong Histamine H1 effect has been a lifesaver. My original Valley/NJ Oncologist was unwillingto refer to Palliative so I finally self-referred/forced the issue and SO glad I did. I am also a retired Paramedic (my 1st career) Now work in Adv. Manfacturing Health & Safety and they have been great and very supportive.
Enough babbling for now. Thanks much for listening and your wisdom 🙂
Good morning, @skibum486. MSKCC has a great reputation for BMTs and aftercare, so you’ll be in good hands there. Yup, now’s the time to make the changes to your preferred clinic. With your Paramedic background and ‘spidey-sense’ for what feels right in the medical world, that gut feeling will serve you well. I had a similar ‘feel’ for my options when selecting my BMT team. It’s so important to get the right team, not only for the initial stages of transplant and recovery, but for followup care.
I cringed reading about your allergies to the anti-nausea meds! I can’t even! Sublingual Zofran was my go-to most often but there were 3 more in my arsenal. The good news is, generally as blood numbers start to rise after engraftment, many of those lovely side effects start to diminish. So I wish you well going forward and hopefully those meds will just be a passing memory!
Please don’t hesitate to ask questions or post comments about any aspect of your BMT process. We’re here to help! Our BMT teams are awesome for handling details. But until someone actually walks the walk…well, you get the drift. As mentioned in a previous post, we can take this conversation over to one of the BMT discussions where you’ll be among other Chimeras. LOL. We’re great trail mates along this new path you’ll be taking!
I’ll meet you over in My Bone Marrow Transplant (BMT/SCT) story: Will you share yours?
https://connect.mayoclinic.org/discussion/my-bone-marrow-transplant-bmt-story-will-you-share-yours/
I’ll post a comment for you there to make it easy to reply.