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Update: Lutethera treatment is over

Neuroendocrine Tumors (NETs) | Last Active: 4 days ago | Replies (35)

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@zacharycat

After first diagnosis Dec 2023, had lanreotide injections and a hepatic artery embolization. Neither seemed to help much. In Feb 2024 started folfox chemotherapy, which i tolerated but with side effects (nausea, numbness in hands and feet which i still have).
The PRRT with Lutathera ran from May- Nov 2024. Much easier to tolerate than chemo, probably because it targets the
tumor sites specifically.
In April 2025 had some problems and was taken to hospital in ambulance as in Dec 2023. Surgeon removed tail of pancreas, spleen and gall bladder, and did liver ablation. Had PET scan today, will meet doctors several times this week. Maybe i shouldn't have read the test report online as it has me rather depressed.

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Replies to "After first diagnosis Dec 2023, had lanreotide injections and a hepatic artery embolization. Neither seemed to..."

I don't know how you don't read it and feel like you got punched in the gut afterwards. But, try to get some rest and get ready for your doctors' appointments. Have some questions prepared, keep an open mind, and listen. New treatment opportunities might be available. Things are changing more rapidly than even. If you learn something exciting, or boring for that matter, please share here. We are all learning things together.