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Update: Lutethera treatment is over

Neuroendocrine Tumors (NETs) | Last Active: 4 days ago | Replies (35)

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@tomrennie

What surgery did you have? What other treatments have you tried? What is your care team telling you?

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Replies to "What surgery did you have? What other treatments have you tried? What is your care team..."

After first diagnosis Dec 2023, had lanreotide injections and a hepatic artery embolization. Neither seemed to help much. In Feb 2024 started folfox chemotherapy, which i tolerated but with side effects (nausea, numbness in hands and feet which i still have).
The PRRT with Lutathera ran from May- Nov 2024. Much easier to tolerate than chemo, probably because it targets the
tumor sites specifically.
In April 2025 had some problems and was taken to hospital in ambulance as in Dec 2023. Surgeon removed tail of pancreas, spleen and gall bladder, and did liver ablation. Had PET scan today, will meet doctors several times this week. Maybe i shouldn't have read the test report online as it has me rather depressed.