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Update: Lutethera treatment is over

Neuroendocrine Tumors (NETs) | Last Active: May 14 12:11pm | Replies (35)

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@zacharycat

I had 4 Lutathera treatments, and if possible would have stayed on them indefinitely. No side effects and felt stronger than i had since before cancer diagnosis. I guess they have to stop though due to kidney damage. 5 months later symptoms returned and i went in for surgery. PET scan now shows more activity in the liver and possibly lymph nodes, so im afraid time may be running out.

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Replies to "I had 4 Lutathera treatments, and if possible would have stayed on them indefinitely. No side..."

What surgery did you have? What other treatments have you tried? What is your care team telling you?