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Iron overload, or hemochromatosis

Blood Cancers & Disorders | Last Active: May 31 12:38pm | Replies (13)

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@cakes

Arthritis, fatigue, and depression. Oh, I didn’t forget stress.Yes you have many symptoms of hemochromatosis there are many many more which you will be finding out if you have hemochromatosis plus as you read on, you’ll see some of us with hemochromatosis will let you in on how we’ve been suffering over the years here’s just more to throw at you brain fog!! It sucks I feel as if I have dementia after your first phlebotomy which will be one of many I was diagnosed in 2003 and once a week I would get a phlebotomy this lasted 64 weeks yes once a week for like 15 months that’s how long it took to get my iron levels down now I go and get what they call maintenance phlebotomy I go every 6 to 8 weeks about 6to 8 a year

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Replies to "Arthritis, fatigue, and depression. Oh, I didn’t forget stress.Yes you have many symptoms of hemochromatosis there..."

Welcome to Connect, @cakes. After reading your bio this morning, I so very sorry for your loss. I can’t imagine losing a child and you’ve received a double blow of both a daughter and son! There’s nothing that can prepare us for a tragedy of that proportion. I hope you find peace and healing over time.
Thank you for sharing your experience with hemochromatosis. It sounds like you’ve gotten iron levels to a reasonable level with the frequent initial phlebotomies and now down to just maintenance phlebotomies. Do you have any dietary restrictions?