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Replies to "The fact that you can be away for 3 weeks is something HOCM and Camzyos have..."
Hypertrophic Cardiomyopathy (HCM) | Last Active: 2 days ago | Replies (13)
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Replies to "The fact that you can be away for 3 weeks is something HOCM and Camzyos have..."
I've been on Camzyos for over 18 months now and my dosage has been stable for a long time, so maybe that's part of it. I suspect another reason is that I'm in Canada, and our system seems quite different from the US (which is where I assume you are located). I have a very good insurance policy and have had incredibly good support from my insurance company, the pharmacy, the manufacturer, my nurse-case-manager, and my cardiologist right from day 1. My wife and I went on a SIX week camping trip last year, and a single phone call resulted in them providing a one time (once per year maybe??) 30-day supply to ensure that I would not run out. Now that my dosage has stabilized, I'm getting echo tests every 3 months so we just had to schedule around that. As I said though, I'm so grateful for the support and cooperation I've encountered. It saddens me to hear the struggles so many people have had trying to get their regular monthly supply.