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Post Covid weird symptoms

Post-COVID Recovery & COVID-19 | Last Active: 4 days ago | Replies (90)

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@jeindc

Thank you so much, @law59 [our "handles" remind me of the early AOL chat room days when almost no one used names!] So vit C gummies better than anything else? NO one of the docs I've seen has recommended anything at all.

Did you have any testing to better understand the central nervous system malfunction for this and related issues? I just read a fascinating article about "Long COVID toe and rashes" https://www.aad.org/public/diseases/a-z/covid-toes I had the toe issue in the beginning - and it periodically returns. It then became an ingrown big toe toenail. I had never in my 70+ years had an ingrown toe or finger nail. The rash - one doctor - who is considered a long COVID specialist - said it was not related to COVID and was lipedema tho' that too has been debunked. The rash that won't go away and the swelling of my leg and foot and two areas of rashes came during COVID in 2023. (Thought first to be lymphedema, a 2 hour ultrasound ruled that out.) It just won't stop and is so uncomfortable.

Central nervous system next I guess. And a PET scan to check to see if this all has brought NHL back - which was in remission but likely triggered by all the rest or so it is supposed.

We are all guessing as are the scaled-back research, aren't we?

Sorry this was longer than intended.

JE

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Replies to "Thank you so much, @law59 [our "handles" remind me of the early AOL chat room days..."

Hi @jeindc. Know your words so well and my response probably long too that will take couple of hours to type😛 . Have had many vials of blood, chest ct’s, brain mri’s, ent scope, pft’s, sleep study, ….Was fortunate in beginning of this to had worked for critical care pulmonary/allergy physician who knew my health well, was honest about the health challenges and lack of understanding or tests, and who helped many doctors worldwide and countless covid patients himself. The first ER physician was also very aware and empathetic explaining in detail with appreciated brutal honesty “We just dont know and treat the symptoms we can”. My other half is also military medically trained so knew my symptoms needed different immediate attention and medical remedies with persistence trauma level care in my healthcare system🙃 I have no doubt I am alive today because of that. The rash, itch, bump no itch, shingles like, internal itch/pain…same challenge appts not available during particular type as everchanging so take pics, do best to eat low histamine and have kept info on food reactions for years with epi pen available. Despite all very lucky to be here and hope you too find that with your quickest healing journey 🌈