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Post-treatment follow up for clear cell endometrial cancer
Gynecologic Cancers | Last Active: 15 hours ago | Replies (40)Comment receiving replies
@corinne1985 I agree with @beebe. It's good that you are doing both radiation therapy and chemotherapy.
Are you located in the U.S. or Canada? I am asking you this because scans seem to be the standard in North America. You wrote: " i asked my oncologist "when will i have a scan again" she said "Corinne there is nothing to scan, Mr Kumar removed it" we will keep a close eye on you now as we dont know how this type acts 🙁 " I find this comment puzzling. From what I have experienced myself and read from others we have periodic CT scans to detect signs of cancer at the original place and in other places in the body. For instance, I had CT scans with contrast for pelvis, abdomen and lungs because this is where it is most likely other cancers or metastasis would be seen.
I completely understand your anxiety and fear too. All that you went through is traumatic. Of course you feel anxious and frightened. I still feel that at times although I have been NED (no evidence of disease) since 2022. Every new pain I have I wonder if it's cancer. I cannot seem to get away from that.
What is your next step? Are you still in chemotherapy?
Replies to "@corinne1985 I agree with @beebe. It's good that you are doing both radiation therapy and chemotherapy...."
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Hi Helen! Thanks for your reply.
I live in the UK - I too am puzzled from it however cant say i wouldnt be a bag of nerve's having one for the fear of them saying those god awful words 🙁
I think i will ask Dr Sangha to check as if this is something that is routine else where , why cant i? After all My GP should have done this when i flagged it back in 2023 , thats made me so cross to let me get to where i was with it. Completly irresponsible and its my life!
Yes all the aches and pains are horrid and i was told that the Chemo ages you by 15 years so when i turned 40 i turned 55 .... thats not great but i was happy to go for it to give me the best chance. I started this treatment in November and finished in the December. I completed it all by 29th of December to walk into the New year "2025" Cancer free!
All i can do is listen to my body and i have my Oncologist and team on stand by for anything i want , so thats a comfort to a degree! The Radio therapy battered me i was so tired from that but they zapped me from my pelvis up to below my ribs , i had 38 lymph nodes took out too , only two shown the disease so i take that too as a positive.
I sit at my work desk and then i have some research which is where i found the Mayo Forum and i am so glad there is one , i hate speaking to my family about it as i ask things nobody knows and like im wanting reassurance ... such as "am i going to die" its horrid! And they are like , Its gone etc but i know the type is a very shitty one and thats the part that plays on me all the/most of the time!
Its great though to speak with all of you that are still going and have similar experiences and or situation to me, i felt very alone but now i feel releif , not that there is other but i mean in the sense , we can connect and share and not be judged or looked at like a crazy person. x