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Has anyone had experience with Jakafi?
Blood Cancers & Disorders | Last Active: 17 hours ago | Replies (75)Comment receiving replies
M the opposite! My iron is crashing? PV and Hydroxyurea also. They upped the pills saying that less phlebotomies would give my body time for the iron to slowly rise BUT more pills make my hair fall out and I get tooth pain and just feel crappy.
Replies to "M the opposite! My iron is crashing? PV and Hydroxyurea also. They upped the pills saying..."
What is your tooth pain like? I just started with HU 2 months ago and I have noticed some tooth pain my front teeth. I am kind of worried because I think my ET is causing increased gum disease. I am hoping it goes down as my platelets do, but the tooth pain started after the HU.
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Try essential amino acids to stop the hair loss. I was losing handfuls of hair with HU, then I started taking amino acids for something else and within two weeks my hair stopped falling out and has grown back (albeit a little fuzzy because chemotherapy messes with hair follicles). I take Doublewood brand Essential Amino Acids. I hope it helps you.