It is a nasty word, isn’t it. Call it whatever makes you feel more in control of things.
I take 1000 mg HU daily for PV for the last 5 years or so.
I have numbness in my feet and legs up to about mid calf. For maybe the last 6-8 months I have been getting weird sharp pains and what I think must be Restless Leg Syndrome.
I received a gift of peppermint tea at Christmas. I had never had it before. One night a couple of months ago I decided to try it and dropped some pieces of crystallized ginger in it to sweeten it up. After a week of the tea I realized my legs weren’t bothering me as much at night. I’ve kept up that nightly cup of peppermint tea with ginger and it is, I think, helping the pains in my legs and making it easier to fall asleep. Just an idea for you.
I am sorry for your and your children’s loss.