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← Return to Propofol for bone marrow biopsy
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Propofol for bone marrow biopsy
Blood Cancers & Disorders | Last Active: 5 hours ago | Replies (52)Comment receiving replies
I am just beginning my AML journey. Initial diagnosis Biopsy and Chomo inpatient At Valley Hospital.
They did their bone marrow biopsies at bedside with just Local. As a retired paramedic I said to the Oncologist Holy Moses! this should be done with Propofol asleep. "He said that is not how we do it here.". Even the nurses were traumatized. So it was time find alternate care.
So Ive changed care to a setting which does them under anesthesia. World-class care at a different Institution. Requires advocating and research and standing up to my original Oncologist. And I'm happy to give up a day and have a ride home for each subsequent biopsy. There is enough un-avoidabl pain and suffering with Cancer. I urge you to inquire to what other world-class care possibilities may be available.
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Welcome to Connect, @skibum486 though I’m sorry it’s due to your diagnosis of AML. However, you’re not alone in your journey. There are quite a few of us in Connect who were diagnosed with AML and here to offer support and encouragement. I had AML 6 years ago! With treatment and a BMT, I’m super healthy with all that medical drama behind me!
I’m with you on the BMBX under propofol! That’s the only way to fly! 😀 You were wise to advocate for yourself to find a better class of health care! AML is nothing to trifle with. You need to have a level of trust and competency with your medical team so that you can focus on healing.
I’d like to introduce you to a few members who have/had AML. If you don’t mind sharing more about yourself, I can ‘connect’ you with relevant discussions.
What type of treatment are you receiving? Do you have specific mutations which are driving the AML? Has there been mention of a bone marrow transplant?