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Blood Cancers & Disorders | Last Active: 3 days ago | Replies (28)
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Hi Lori!
I just finished 2nd out of 3 Dacogen rounds. I have a consultation with the transplant team at Methodist TX Medical Center this coming Tuesday the 13th. Then my Dr wants to do another biopsy on the 20th to see how things are looking before the last Dacogen round. He thinks the treatments might’ve been a bit strong for me. After the first round, my white cell count dropped really low. Somehow I got a blood infection which landed me in the hospital for 9 days! I sure don’t want to go through that again!
Anyway, have no idea what to expect at the BMT consult. Keeping an open mind & enjoying feeling better. One day at a time!
Replies to "Hi Lori! I just finished 2nd out of 3 Dacogen rounds. I have a consultation with..."
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Hi Diane. Glad to hear you’re doing better after that infection! One of the pitfalls we deal with when our white blood count drops during treatment. It leaves a person pretty vulnerable to infection, whether bacterial, fungal or viral. I can sure empathize with the hospital stay and the amounts of IV antibiotics you had to get you through those 9 days. Better living through chemistry, right? My husband took a photo one day of the piggy-back IVs. New record for me with 18 bags! 😀
Let me know if you have any questions after your conversation with a BMT doctor. They’ll be giving you a lot of information and it can feel overwhelming. I know your husband will be along as a 2nd set of ears and your support staff for Team Diane. 😁
It can also be helpful to have a little notebook along for taking notes and for the list of questions you might have. I found that having a notebook (or my phone) helped me keep track of my questions so I could go right down the line without getting sidetracked. I’m a, “OHH look, a butterfly” kind of person. So having the notebook brought me back to reality 😁
If interested here are a few questions to give you an idea of what you may want to ask at your consultation.
Am I good candidate for a bone marrow transplant?
What tests or evaluations will I need before the transplant?
How should I prepare physically and emotionally for the procedure?
Can you explain the steps involved in the bone marrow transplant process?
Will I be required to stay near the clinic for a period of days? Will I be inpatient or outpatient?
What type of transplant is recommended for my condition (autologous vs. allogeneic)?
What are the potential risks and complications associated with the transplant?
What side effects should I expect during and after the procedure?
How will you manage any complications that arise?
What is the expected recovery timeline after the transplant?
What kind of follow-up care will I need post-transplant?
How often will I need to come in for check-ups?
What support services are available for patients and families during treatment?
Are there resources for financial assistance or counseling?
How will the transplant impact my overall prognosis and quality of life?
Feel free to add your own!
Let me know what you find out, ok? ☺️