← Return to Unexplained Tachycardia - Help!

Discussion
cfargo avatar

Unexplained Tachycardia - Help!

Heart Rhythm Conditions | Last Active: Aug 10 9:41am | Replies (36)

Comment receiving replies
Profile picture for apdaye @apdaye

Your story sounds like mine. I cannot tolerate the beta blockers or calcium channel blockers. I become short of breath, have peripheral edema and chest pain. None of the drugs control PVS / VTach episodes. Two electrophysiologists did not recommend ablation( stating it was not always successful or the arrhythmia is difficult to induce on the table. I was told I needed a pacer/defibrillator in 2021. I have hypertrophic cardiomyopathy, a “mild” bridge in LAD, mild mitral regurgitation. I have been guessed at with, brugada, POTS, and now disautomia. I have PVCS daily that may or may stop and I go into nonsustained V-tach. My thyroid function is normal, electrolytes normal. I was told possibly sleep apnea( mild) but I now have a cpap device ( with no improvement).
Fatigue, stress, caffeine and alcohol are all culprits to increase episodes. My EF has gone from 77 to 60 since I had AICD implant. I have never been shocked but I am paced at 60. The meds ( which I am not taking any now) would drop my HR to the 40’s. I am sick of having these meds thrown at me with no explanation of why or how to fix the problem. I can have an episode of vtach where I am very close to losing consciousness. I have learned to take deep breaths and pray it subsides. I have had several echos, the mri was not performed due to artifact from AICD. I am now awaiting a cardiac CT but expect no intervention from this either. I am 66 very active and semi-retired. ( I was a RN for 30 yrs). I am disappointed with the direction healthcare is going. You must be your own advocate and find a doctor you trust .

Jump to this post


Replies to "Your story sounds like mine. I cannot tolerate the beta blockers or calcium channel blockers. I..."

I have gone through two cadios MD-one thought he was a god and actually was so old and living in the past. the other spent 8 or so minutes
and accused me of getting involved to much. " You Tube" has excellent presentations on all aspects of this matter, mostly presented by professionals.

I had a cardiac calcium CT for chest pain that the MD refused to even a blockage of some size in the LAD but the Calcium CT doesn’t show you the size of the blockage however it is a wonderful screening and inexpensive in the grand scheme of things sadly, not covered by insurance but only cost me $150 in NC! So all in all not bad!! Even then the MD refused further testing despite my very strong family history of heart disease, hypercholesterolemia, Hashimoto’s thyroiditis, spondylo-arthritis & psoriasis, etc, I’m 52yo F that’s a retired RN with fibromyalgia and chronic pain from multiple neck surgeries and degenerative disc & joint disease so I’m no stranger to a certain level of pain ALL the time! My event monitor finally caught SVT where my kardiamobil 6L has never been able to catch it and the one time I could catch it I passed out completely. Anyway, I’m as frustrated as each of you and appreciate the sounding board!! My cardiologist asked if I had tried putting my feet up on the wall when an episode hits 👀 if I could get my feet on the wall above my head without passing out THAT would be a feat right by itself!! Shaking my head! Sometimes being your own advocate is so damn tiring!!! But what do people do that don’t have the medical knowledge? Much luck all!!