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Has anyone had experience with Jakafi?
Blood Cancers & Disorders | Last Active: May 29 6:40am | Replies (80)Comment receiving replies
I've been on Jakafi for about a year. It has kept my platelets under control but my red blood cell/hemoglobin levels have been dropping so low that I had a transfusion after 3 months of 10 mg Jakafi. Then they dropped my dosage of Jakafi down to 5 mg. twice a day. My red blood cells/hemoglobin has been dropping so low again, that I have now been switched to Ojjaara. Haven't received the medicine yet. It costs $1100. a day.
Stay tuned. I'm hoping for some better results.
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Wow what a ride! What is your diagnosis? I have PV and am on Hydroxyurea for about 2 1/2 years. Keeping the platelets in check with phlebotomies very few months. My red cells are still climbing and my iron is almost nothing. Hoping that slowly goes up being I feel
Like crap. Keep us posted on your medication.Not sure how ANYONE is expected to pay for that?! We all need to learn what’s expected if/when current meds stop working. Good luck!