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Anyone living with Essential Thrombocythemia with JAK2?

Blood Cancers & Disorders | Last Active: 6 days ago | Replies (118)
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@williamsjen

Hello good news my Platelets are now at 333 I feel much better lots of energy and I take 1000 HU mg a day, I take them at night around 8 that way I don't feel the fatigue because I am sleep, Someone on the support group told me to take the pills in the evening before bed it really works. If you would like to talk please let me know. Jen

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Replies to "Hello good news my Platelets are now at 333 I feel much better lots of energy..."
stacerb1 | @stacerb1 | 6 days ago

Hi Jen— I’m in the same club. ET w/JAK2. Diagnosed last month. Platelets were 720 initially and prescribed 500mg HU. This month platelets down to 500 and now taking 1000mg HU. Not too much fatigue so far, some dull headaches and burning feet at times. Thank you for the tip on taking the HU in the evenings. Wishing you good health & high spirits on this journey! 💛

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