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Anyone dealing with CRPS

Chronic Pain | Last Active: May 12 2:01pm | Replies (3)

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@pamglutemedius

I'm sorry you are going through this. My CRPS started 8 years ago. I felt like I was on fire and clothing, everything that even softly touched me HURT. It's been 8 years now, and it's "better" but I still have it. The parts of my body that had the initial trauma are numb but still hurt when touched a certain way- hard to explain. There really isn't any cure. Most Dr's don't understand it. I"m glad you have someone who does. Best of luck and good health to you. Keep a positive attitude 🙂

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Replies to "I'm sorry you are going through this. My CRPS started 8 years ago. I felt like..."

I have been doing this for around 40 years. The initial area for me is also numb and does what it wants to do. That is also true with the rest of my body. I love the game we play every second on where it will show its ugly head. Right now, it is having fun with digestive, heart, neck, eyes and ears. Teeth and throat just went through a cycle. Neck, eyes and ears have been going on for the last couple of days. Yes, I have it all over. If anyone touches me and I am not ready to accept the touch, let's just say it is not a pretty picture. All we can do is help each other. Comparing notes helps too.