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Post-treatment follow up for clear cell endometrial cancer
Gynecologic Cancers | Last Active: 1 day ago | Replies (40)Comment receiving replies
Hi Corinne,
Thank you for sharing your experience. I applaud you for turning your body into a temple and for working out daily!! Your experience as a young woman certainly makes this disease & treatment more challenging for you than for me, but we share the fear of recurrence and all of the unknowns (even to our oncologists) about this aggressive cancer. And I don’t know if having or not having Lynch syndrome makes a difference in any way.
I wish you well and will continue to read posts for updates. It is good to have “sisters” who understand and support each other.
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Absolutely! It is really hard living with it , like i have really great fab days where it doesnt even enter my thoughts however then this dark doomy cloud hovers over and i ask myself " i wonder how long i have and will it hurt and what will my family do without me" its horrible! But i'm here and i am ok well no i am great and i am hopeful thats a really good positive!
What i tend to feel now is that from after my radical surgery , i beleive its nerve damage amongst other things (ie: from the radio it has blasted my bowel and bladder and that now is sensitive , now with all the gym each day and working on my abdomen i would before think - yes thats muscle pain which is normal , now im "oh no what if" i want to avoid it taking over my life so i am making my body as acidic as i can , i have every possible antioxygen i can find and put into me each day. I am praying daily its all going well and that they really did do a number on me , i opted in for the Radio and Chemo , they had removed the cancer which is great and said i do not have to have it but its in my best interests so of cores i went in for it. It will have factors in my later years that will upset my bladder/bowel but i will cross that path then AS I WILL SURVIVE to get to that!
I will put you and the fellow sisters in my prayers to this evening for us to continue beating this and having a happy life once again.
As for the Lynch , it was expected and thats where my Drs have gone wrong. I should have had a routine hysterectomy two years ago! They let me slip and now im here 🙁
Not all lost , they got it out and hopfully fried the rest of anything! It helps to stay positive , it was very hard those 5 further weeks on top of the 12 recovery from the surgery. No into Surgical Menopause is a killer too! My bones and aches are horrid but its not stopping me! I will fight though as i always have with anything! Life is a challange but also very precious!
I send all my love to you and yours for getting though and i too applaud the determination! Lets beat it together x