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Post-treatment follow up for clear cell endometrial cancer

Gynecologic Cancers | Last Active: May 14 2:09pm | Replies (41)
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@beebe

Corrine,
It would seem to me a CT scan would be done at intervals to check for spread. Yes, your uterus and assorted parts are gone but reoccurrence can occur in the vaginal cuff and cancer could have spread out of the uterus via lymph nodes or even through the fallopian tubes during surgery. It is good you were able to do both radiation and chemo as the combo is synergistic giving better results.

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Replies to "Corrine, It would seem to me a CT scan would be done at intervals to check..."
Helen, Volunteer Mentor | @naturegirl5 | May 11 9:34am

@corinne1985 I agree with @beebe. It's good that you are doing both radiation therapy and chemotherapy.

Are you located in the U.S. or Canada? I am asking you this because scans seem to be the standard in North America. You wrote: " i asked my oncologist "when will i have a scan again" she said "Corinne there is nothing to scan, Mr Kumar removed it" we will keep a close eye on you now as we dont know how this type acts 🙁 " I find this comment puzzling. From what I have experienced myself and read from others we have periodic CT scans to detect signs of cancer at the original place and in other places in the body. For instance, I had CT scans with contrast for pelvis, abdomen and lungs because this is where it is most likely other cancers or metastasis would be seen.

I completely understand your anxiety and fear too. All that you went through is traumatic. Of course you feel anxious and frightened. I still feel that at times although I have been NED (no evidence of disease) since 2022. Every new pain I have I wonder if it's cancer. I cannot seem to get away from that.

What is your next step? Are you still in chemotherapy?

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