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Anyone dealing with brain cancer

Brain Tumor | Last Active: 15 hours ago | Replies (23)

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@dbcondrey

hopefully others can give you suggestions re; sweating, my husband tried in the early heat of kentucky june/july and gave up, it was far too difficult with the'burning sensation. There is aoptune device support group and there is a hat with a fan that others have used. Unfortunately my husband became so fatigued with his first rounds of treatment that combined with the confinement of 18 hours just didn't work for him, however, others seem to have more positive results. it is definitely a life style change, so keep communication with the optune team and support group. I dkn how active your md is , ours just had referred us to the optune team and felt they were best aware of how to answer questions. be aware however that they are not medical personnel on the 24hour help line but technicians. The trainer is not a nurse, but a patient care tech ours was very helpful with dos , don'ts sharing other pt experiences. good luck My husband is however now 4 months over the expected prognosis of a year to live, but has for the last 6 months been confined to w/c to chair, due to poor mobility and balance. unfortuntely for him it was clear from the beginning that a biopsy would have disabled him more and thus he was considered inoperable, hopefully yours has a better description of the tumor that has better chance of targeted treatment. ours didnot.

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Thank you for the information. It sincerely helped! Good luck to you