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Living with autonomic neuropathy

Neuropathy | Last Active: May 11 4:44pm | Replies (10)

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@andyjustin

Sadly,there is no going back, to our pre AN lives, and our future as we had anticipated before this “ condition” changed forever, I wonder of if I will be able go teach my new grandson and engage in all I has hoped now in question. Will I be here when he’s 12, I don’t now know, all my symptoms though now masked by drugs will progress and shorten my life and rob me of moments of joy I has anticipated, don’t want to dwell in this, don’t have a choice, one pain at a time, one day at a time. Stay strong!

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Replies to "Sadly,there is no going back, to our pre AN lives, and our future as we had..."

Hi,
All I can do is live for today. Each day I wake I deal with the day ahead, the day I don't wake I assume I won't be having to deal with it at all! ANS has changed the way I look at my future, I'm now reluctant to take on long term projects for fear I won't get to finish them, instead opting for shorter quicker projects I at least have a chance of completing. Instead of precision work I now just fumble my way through as best I can. I'm blown away by people who tell me I have done good work when I know it is not up to my previous quality, all my life has been working to extreme precision, not being able to attain that is destroying me as I know it was possible not so long ago. I try to be happy that at least I can still work, walk, talk and be argumentative when I feel the need. Luckily I'm past the pain bought about by thinking of my plight, I'm more concerned about fitting everything in before the faitful day ANS decides it is time to stop the heart muscle because it can.
Cheers