What side effects have you experienced from SBRT for prostate cancer

Starting the second week I had some tiredness and needed a nap in the afternoon. I had burning urination and a weak stream for about two months and needed Flowmax. For about six months my prostate had some mild pain that was exacerbated if I rode a bike. A year later not really having any side effects. If you need ADT, those side effects will generally be worse.

tommyo, hi. I'm just dropping this video link in case you haven't looked at the MRI guided option for SBRT. https://www.youtube.com/watch?v=aWCqAQ2SEn0 Best luck with your treatment!

Thanks for sharing info on your journey much appreciated

Sorry for your diagnosis. Welcome to the club none us signed up for. What was your Gleason score 3+4 or 4+3? How many cores? Number and location of lesions? Just asking as I was recently diagnosed and was given options or RARP, cryotherapy, or SBRT. What are your reasons for leaning towards SBRT?

I finished radiation for mine December 28, 2023. I was 68 years old at diagnosis. One core 4+3, one core 3+3. PSA was 7.8, Decipher was high at 0.84. confined to prostate, my PSMA PET was clear.

My RO was able to visualize my urethra on a CT, MRI and the PSMA PET. Using that information he used "urethral steering" to ensure the urethra did not receive any radiation "hot spots". I had 3 fiducials placed and a Barrigel rectal spacer. I was treated with 5 fractions of SBRT over 2 weeks using a Varian Edge LINAC. My prostate received a total of 36.25 Gy with the primary lesion receiving a focal boost to 40Gy. I also took Orgovyx for ADT for 6 months, The entire ride was remarkably easy, and if I had amnesia from the actual two weeks of treatment I would be hard pressed to know anything was done. Six weeks after the SBRT we went on a two week SCUBA trip.

So, 16 months post radiation and all is well.

Also, check my posts here:
https://healthunlocked.com/prostate-cancer-community/posts/150350149/sbrt-4
https://healthunlocked.com/prostate-cancer-community/posts/150384210/day-8-post-sbrt
https://healthunlocked.com/prostate-cancer-community/posts/150412299/post-sbrt-day-9-15
Stay Strong Brother, We Got This.

Hi there
Thanks for responding and yes this is the journey none of us wanted but here we are… I had 11 cores 3 were positive 2 Gleason score 7 (3+4) and 1 Gleason 6. Leaning towards SBRT at this point because I’ve heard the side effects are less.

Similar findings to me but I had four cores of 3+4. How many lesions and location? I understand lesion location can make a difference in radiation treatment. I was told that surgery can have earlier side effects that diminish over time and radiation has fewer initial side effects that can increase over time. So many trade offs to consider! At 3+4, you shouldn't be in any hurry to make a decision so take your time to learn all you can.

Nothing at the time. Mild ratiation cystitis (urinary-tract irritation) and proctitis became evident a year later.

The cystitis caused some hematuria (blood in urine) and incontinence, but I got it under control after a few months, and both are just mild annoyances now.

I had 60 gy of SBRT to my prostate, divided over 20 fractions. I'd previously had 20 gy of post-op SBRT to a lesion on my thoracic spine, divided over 5 fractions.

Glad to hear that everything went well with you! That is very encouraging for me because I am nervous as hell.

Same here, I was 68 y.o. when diagnosed in February. I was Gleason 7 (3+4). I started ADT (Orgovyx) on March 26, SBRT from April 9 to 21 (without SpaceOAR). I noticed some white mucus and a little blood on my stool about 4 days in week 2 post-radiation; I notice no more in week 3. Heard that risk of rectal damage could have been reduced substantially (not 100% eliminated) if there was a spacer.
My oncologist mentioned that my immediate side effects would occur around the 3rd or 4th week after my last SBRT. I am cautiously optimistic for this coming week, when my wife and I will be on a Disney Cruise (booked 8 months before my diagnosis). My oncologist said that I'm good to go; I hope if my SEs peak on week 4, they wouldn't be much worse than week 2. (The long-term SEs may be 10 years or more down the road; not worried about them yet--new treatments may be available by the time they appear, if ever.)
My oncologist will advise if I can get off Orgovyx after 8 or 12 months. I am just a month and a half now.