Hi,
It took me a little while to get over the devastation of this disease but I finally woke up to the fact we all die anyway, just some of us maybe sooner than expected. I try not to let it bother me or stop me doing what I want to do. There are days when all I can do is sit and wait out the daily symptoms, while other days I'm as good as I can expect and get on with life. I have had temporary paralasis from the waist down and waking to be unable to speak with no knowledge of what speach is or even words. A left leg that thinks it has taken the next step only to fall when the right leg figures it is it's turn to move. Thankfully each is only temporary and resolved in a minute or two. My digestion is pretty well stuffed and there is nothing that can be done but manage it as best I can. I push myself through these events and won't give up, I don't know how to give up, this disease is not going to define me or what I can do, despite it constantly nibbling away at me. Sadly this won't stop it and eventually I will have no option but to capitulate, but until then I do what I have to do to deal with it and other health issues I'm plagued with. I believe I'm better know than when this all kicked off having made my own play book to guide me. I refuse painkillers and don't take anything for the other health issues, but I have no option but to medicate the digestive system, and that is barely making a difference. A difference that is certainly noticable if I stop treatment, then all hell lets lose.
Cheers