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When to accept permanent long covid?

Post-COVID Recovery & COVID-19 | Last Active: 3 hours ago | Replies (20)

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@mimilc25

Hi there, LC Friends: I Was smacked with Covid 12/24/19. Yep, lucky me but that’s another story. In terms of LC: I started having LC symptoms in March 2020. Like many on the string I had them all! Aftertwo years my doctor referred me to specialists that could take a look at everything that was bothering me (heart, digestion, memory, lungs, bronchial tubes, Micro clots, etc.) Not much was known about LC back then, however, everyone of the different specialists Said that to the best of their limited knowledge, it was all due to Covid. Mind you, I’d also had 5 years of positive Lyme Disease tests as well. So we were trying to battle both. In any case, here I am 5 1/2 years out and I still get PEM. It presents itself as total exhaustion the day after I try to live my old life! As well, I’ve had two flares of diverticulitis in the past six months and also had achilles tendon surgery a year ago. My doctors done a lot of research on Covid and turns out it affects just about everything so you never know what’s going to crop up. No matter how positive I am mentally how much I stay active, that bugger does not want to leave. Within a month or so I will be seeing a Long Covid specialist at Dartmouth. I’m not really certain what I’m looking for in terms of answers because I don’t really believe that anyone has any still at this late date, but I would like someone who is well schooled in LC.
My most recent challenge, as some of you who read it might know, is with the micro clots. Out of the blue, no matter what I’m doing, or have done my cherry red, lower legs have returned. Mind you, not Daily, but they show up for a few days go away for a few days and come back for a few days That actually stopped happening Four years ago. I have no idea what’s prompting their return.
Anyhow, sending so much love and healing energy to all of you.

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Replies to "Hi there, LC Friends: I Was smacked with Covid 12/24/19. Yep, lucky me but that’s another..."

No one deserves all you've had to deal with. Best of luck at Dartmouth. Hoping the best for you.

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I’ve had LC since February of 2021. The PEM is what I hate the most. I can’t ever predict perfectly when too much physical effort is too much (or too much excitement) and get smacked down over and over.