1. < Polymyalgia Rheumatica (PMR)

First meeting with Rheumatologist for PMR, need suggestions

Posted by jillsteindler @jillsteindler, Oct 12, 2022

I have really appreciated following all the discussions on this site, it’s been super informative and helpful!
I was diagnosed with PMR in mid May and I’m on 15mg of prednisone. I am meeting with a Rheumatologist at the end of the month and want to be prepared. I would love some guidance on what kind of questions I should ask and anything you want to share that will help me get the most from this visit. Thank you!

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megz | @megz | May 8 9:30am

Have you been diagnosed with PMR?

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1 reply
Mike | @dadcue | May 8 10:57am
In reply to @megz "It was an hour long appointment which I only summarised. There were other things he mentioned,..." + (show)
@megz

It was an hour long appointment which I only summarised. There were other things he mentioned, like a slight rheumatoid factor at the last bloods where in the beginning there was none. He wants to know if that and a few other things have changed. As has been discussed here at times, things can change over time, leading to a different diagnosis. In my mind, it doesn't necessarily mean the first diagnosis was wrong. There are sometimes other things going on as well, as you know.

My challenge now is to keep this reduction going smoothly, as I told him I'm not interested in methotrexate, which he mentioned as a possibility if there is a second flare. I'm trying to keep an open mind while being firm on a few things. Cheeriness and social graces are not my strong point at appointments either. 🙂

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"As has been discussed here at times, things can change over time, leading to a different diagnosis."
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Sometimes things never change and you get additional diagnoses alongside the primary diagnosis. More than one diagnosis may affect the patient's care. I have believed for a long time that there should be a limit on how many diagnoses a patient can have. I have seen patients with more medical problems than me. I somewhat feel like I don't have that many medical problems. My problem was that some of my diagnoses hurt way too much. I don't even count the ones that don't hurt!

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megz | @megz | 6 days ago
In reply to @megz "Have you been diagnosed with PMR?" + (show)
@megz

Have you been diagnosed with PMR?

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Could an admin remove my question about whether a person was diagnosed with PMR please? The question was to a new person whose supplement-promoting post has since been removed.

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