1. < MAC & Bronchiectasis

Penn Medicine/Rifampin

Posted by njlynn @njlynn, 5 days ago

Hello, I am new to this platform while I've had bronchiectasis for 7 years, I only recently tested positive for MAC . It was a bombshell for me; I suppose since I'd gone 7 years without testing positive for it, I had put in out of my mind.
I've been going to Dr. Michael Rey at Penn Medicine Harron Lung Center for treatment since 2022 and just wondered if there are other people getting treated at Penn on this Forum.
I recently started the Big 3 antibiotic regime- about to add rifampin this week -- but saw an interesting post on this site casting doubt on rifampin's efficacy. So I am curious whether most other people taking antibiotics for MAC are skipping it or taking it?
NJLynn

Interested in more discussions like this? Go to the MAC & Bronchiectasis Support Group.

njlynn | @njlynn | 2 days ago

That is really encouraging to me, @ace71. thank you! You have a good attitude and those are good ideas and insights on controlling for side effects.

REPLY
nancywf | @nancywf | 2 days ago
In reply to @sheila7a "Thank you. How long do you wait to take pills after you have oatmeal? I saw..." + (show)
@sheila7a

Thank you.
How long do you wait to take pills after you have oatmeal?
I saw Pulmonologist today.
He said the azithromycin has the least side effects.
Maybe I could take that after breakfast and the other two in evening after dinner.
Right now I'm waiting because have UTI so another antibiotic for that. Started that tonight.
Nitrofurantoin Mono-MCR.
Sitting here reading prescription information and a rare side effect is very serious lung problems. I guess I'll be calling nurse in the morning.
This stuff can wear on your mind. At least did a lot of walking. Two different appointments lots of distance between them.

Jump to this post

Hi Sheila. I try to take the 1 Azithromycin and 3 Ethambutol just after I finish the oatmeal, but sometimes I get distracted - so it could be up to 30-40 minutes later. I wait 2-3 hours and then take the 2 rifampin. I generally will have something to eat an hour later. This has worked for me. I learned a lot from excellent guidance from the Mayo blogs. Nancy

REPLY
View MoreView Less
Please sign in or register to post a reply.