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What happens as you become older with Narcolepsy..
Sleep Health | Last Active: May 13 5:24am | Replies (9)Comment receiving replies
Hello @dredk, It must be difficult having to deal with narcolepsy for as long as you have. I'm not sure if you have done a search on Connect but there are quite a few other discussions and comments from members on narcolepsy. Here's a link that shows the discussions and comments - https://connect.mayoclinic.org/search/discussions/?search=narcolepsy.
The NIH has some information on narcolepsy and also list some tips that might be helpful - https://www.ninds.nih.gov/health-information/disorders/narcolepsy.
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Yes. I've read research papers about the rather surprising effects of that lack of orexin/hypocretin in other areas of health. But many people are recently diagnosed and trying to understand what how this will impact their lives. But I have not discovered much about what growing old with narcolepsy is like. The manifestation has changed. An Epworth sleep test isn't aimed at a 67 year old. My symptoms are different than they were decades ago although I'm reasonably sure it's still due to something in my brain being different.
What I do wish is that when my physicians list my health problems they would not completely neglect mention of narcolepsy. My reading leads me to suspect that some of my health problems could in fact be influenced by narcolepsy rather than lifestyle or genes. So it is relevant. Especially as I get older.