Anyone else have a Redundant / Tortuous Colon?

Posted by onaquest @onaquest, Nov 7, 2018

Hello. Anyone else out there that has a redundant/ tortured colon? I was diagnosed with this a few years ago. I’m usually ok, but if I get constipated, I get sick for a week or two. Last year my gastroenterologist referred me to a surgeon for urgent surgery to remove some of my colon. The surgeon I ended up seeing (not on the recommended list by my gastro doc due to others not available for a long time) said he believed I could live with the redundant colon if I followed a low FODMAP diet. I tried the diet religiously, scientifically (I’m a scientist), and I found it’s not the food I eat that causes these bouts of constipation. The only item I’ve found that might cause the bouts is coffee every day. An occasional coffee seems fine. What has helped me stay regular in a big way is Benefiber (or any pure wheat dextrose generic) three times per day. Lots of fluid.

My gastro doc was upset with the surgeon and said I’d regret not having the surgery. He fears I will end up in an emergency situation. I have searched the Mayo site and don’t find anything about redundant/ tortured colon. Are any Mayo docs doing research or treat this condition? Anyone else suffer from this too?
Thank you! -Jayne

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Profile picture for judithclark @judithclark

I also have a redundant colon along with adhesions and mobile cecum. I have intermittent intestinal obstructions as well. You can drive yourself crazy doing the right thing but it won’t help. Sometime I think doctors give you stuff to eat and do to keep you busy and off their back.

I have been at this too long however and done it all. A tortuous colon is a mechanical thing and no amount of microbiom blah…blah….blah crap will work. It is more the texture that goes through loops. Think of your intestines more like the kitchen sink and what can go down the garbage disposal. If you get stopped up eat only liquids. I take a stool softener daily. Since i am prone to obstructions, i don’t take stimulants. My surgeon told me that you can’t open a locked door and stimulants will make things worse.

Trying different things the doctor tells you to take or do makes him feel that he is proactive to make everyone feel better. Don’t bother as none of it helps. Don’t eat raw veggies. The fiber just stops up the works.

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This post is old, but I hope you're doing better. You mentioned having mobile cecum. I posted several times for the first time today because I'm trying to find out how other people were treated for that and if it worked. Some people apparently have surgery, but i'm hoping for more details.

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Profile picture for member8675309 @member8675309

This post is old, but I hope you're doing better. You mentioned having mobile cecum. I posted several times for the first time today because I'm trying to find out how other people were treated for that and if it worked. Some people apparently have surgery, but i'm hoping for more details.

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I am not better, I am worse. I now have 2 inguinal and 1 incisional hernias. This is all left over issues from my appendix rupture in 2015 while at sea on the Atlantic Ocean. My first of many surgeries took place in the Azores.
I cannot get surgery because no one wants to get involved in my messed up abdominal region. I also think my advantage insurance plan will not pay enough for a specialist to do the surgery. A PPO won’t take me due to preexisting conditions.

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Profile picture for judithclark @judithclark

I am not better, I am worse. I now have 2 inguinal and 1 incisional hernias. This is all left over issues from my appendix rupture in 2015 while at sea on the Atlantic Ocean. My first of many surgeries took place in the Azores.
I cannot get surgery because no one wants to get involved in my messed up abdominal region. I also think my advantage insurance plan will not pay enough for a specialist to do the surgery. A PPO won’t take me due to preexisting conditions.

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Try one of the Mayo clinics. Good luck!!

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Profile picture for charliesophiedaisyro @charliesophiedaisyro

Try one of the Mayo clinics. Good luck!!

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I can’t try the Mayo Clinic as I have an advantage insurance plan. They won’t take advantage plans. I am sure tha5 is financial. I may drop my advantage plan and just have Medicare.

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Profile picture for annbk @annbk

I recently had my first colonoscopy. When I read the notes, I was surprised to read that I have a "loopy" colon. My lifelong chronic constipation suddenly made sense. For the past 20 years, I have successfully treated the problem (without knowing the cause) by eating at least 1/4 cup of amaranth per day. It works amazingly well. If anyone wants to try it and would like recipes, let me know.

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would love the recipe for amaranth to help with chronic constipation. Nothing I eat or drink helps-my doctor said I was beyond diet. But would like to try your recipe rather than take trulance or linzess.

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I also have redundant loopy colon and chronic constipation. I am seeing a colon and rectal surgeon next week to see what I can do since I don't like linzess or trulance. I want to see what else could be wrong with my lower digestive system. I no longer have any bowel movements unless I use enemas or suppositories. I wonder about water irrigation as another possibility. would love to hear suggestions, Lupejoan

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I tried every med for a very redundant colon. Motegrity has worked for me, along with Miralax. You can safely use several doses of Miralax throughout the day if needed, especially when traveling. Miralax alone did nothing for me. Good luck!

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Profile picture for joanlupe @joanlupe

would love the recipe for amaranth to help with chronic constipation. Nothing I eat or drink helps-my doctor said I was beyond diet. But would like to try your recipe rather than take trulance or linzess.

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I would like the recipe also.

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Profile picture for marjoriem @marjoriem

I was just diagnosed with a redundant or torturous colon. I also have a hiatal hernia, esophagus motility issues, and acid reflux. What I have discovered is that there is no medications, supplements, or diet that will totally correct these issues. I quit taking PPI inhibitors because of the recently released study that they can cause a 30% chance of early onset dementia and I have a family history of that. So, I have been left with trying to figure all this out on my own. My Gastroenterologist prescribed heavy doses of Miralax to clean me out and said to take 1 capful, three times a day for maintenance. Well, that was awful! I was having accidents (if you know what I mean) so I had to stop it. Then I read on this blog that someone said a supplement called Cleanse More helped them (magnesium supplement) so I asked my doctor about it and he said it was safe to take and told me to take 2 capsules every other day. That was touch and go. Two capsules seemed to be too much and one wasn't enough so right now I just started back on 1 capful of Miralax once a day and two Cleanse More capsules every other day. We'll see what happens. Regarding the high-fiber diet, I have read conflicting reports and my doctor told me that a low-fiber diet is better for this condition. High-fiber foods will cause too much bulk and will be harder to pass through. I have also seen a surgeon regarding the colon issue and he said surgery is a last resort but to come back to see him if I cannot get a handle on this. It is so confusing trying to figure all this out!

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Esophocool supplement

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Oh my heart goes out to you all!! I have battled constipation all my life.. I remember my Mother giving me enemas as a 5 year old..(and running from the sight of her coming.....!!) So.. I even got so backed up, I had to take an ambulance to a hospital and they gave me a lactulose enema (not good.. intolerant of milk).. the next time I almost died.. went into a "sweat out" and sweated out so much fluid..completey soaked.. called the ambulance .. blood pressure 60 over 40 and it took him 10 min in the driveway to find a vein to start a drip.. used 2 bads on the 45 min drive to the hospital.. so constipation is something I have deep concerns over.. all that said.. I was diagnosed with a tortuous colon last fall.. and was referred to a surgeon..but 15 days prior.. I began to use the potty.. 3-5 times a day.. and continue to do so.. since Oct 15th 2024..I'm 71 now.. (I've been hospitalized atleast 3 times for colitis..) so.. the take away..I do use Trulance ..and Miralax (sometimes twice a day) and drink lots of water.. and drink 2 Vanilla plant based Ensures a day (5mg fava pea fiber) and eat 1 Thomas multi grain English muffin ..8 grams fiber a day..have to really watch what I eat.. hiatal hernia, gastritis, GERD..I feel your agony!! Not going to get "preachy here.. I attribute my bowel change to standing in faith.. the surgeon said "I don't know what you're doing.. biofeed back or what ever..but it's working..I said "The Word works"..still standing in faith for complete healing manifestation of digestive system..I hope some of these things might help someone else.. constipation is nothing to be scoffed at..it's real and it's painful in so many ways.. anxiety.. the whole thing.. I'll pray for you all!!

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