Has anyone experienced incontinence after HOLEP surgery?

Posted by azfox66 @azfox66, Mar 6 8:32pm

I recently had HOLEP surgery at the end of 2024. One of my main issues nine weeks later is incontinence or leakage. Been doing kegels but it still persists. Has anyone else experienced this and for how long?

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Profile picture for vernscw @vernscw

I'm in Arizona, I don't know if we are suppose to name doctors but I had Holep January 21 2025. I am 82 now and only have leaking at night. I wear the pull up diapers at night just in case but never have a problem during the day. What did they tell you at your 3 month follow up meeting?

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At the 3 month visit with my urologist he did a cystoscopy and said all looked great. Told me it may take up to a year to get through the incontinence. I was using 6 to 7 diapers a day for the first 3 months and now use 2 to 3 diapers a day. I leak very little at night but lots when I am up moving around. If I sat and watched TV all day I would have no issues at all. Probably use just one diaper per day. If I walk around a lot I can’t urinate. The more movement I do the more I leak. I have to be sitting for about an hour till I can flow freely. My urologist is in Lake Havasu Arizona. I too don’t want to share his name.

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I assumed you were using the Mayo Clinic in Phoenix/Scottsdale. My mistake. I wish you the best. Before the procedure did you ask the doctor how many of these procedures he had done?

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Profile picture for vernscw @vernscw

I assumed you were using the Mayo Clinic in Phoenix/Scottsdale. My mistake. I wish you the best. Before the procedure did you ask the doctor how many of these procedures he had done?

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My urologist is pretty young. Not sure how many he HOLEP procedures he had completed, but I went for it anyway hoping and praying for a great outcome.

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Profile picture for elcorbs @elcorbs

My urologist is pretty young. Not sure how many he HOLEP procedures he had completed, but I went for it anyway hoping and praying for a great outcome.

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Well sir. I went with a Foley catheter for 13 months looking for the "RIGHT" urologist. Urologist number 5 was the "RIGHT" one. LOL I could write a story on the other 4 that I fired. I am happy with the one I chose. Mayo/Phoenix.

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Profile picture for elcorbs @elcorbs

That is awesome. I am 73yo and couldn’t empty my bladder. Like you I was up 6 to 7 times a night at times. Kidneys backed up and not functioning properly. HOLEP done 3 Dec 2024. So tired of doing pelvic floor exercises. Everything works perfectly (urinating) as long as I am sleeping or sitting and doing nothing. If I am up walking and doing things around the house I have a difficult time urinating. I just completed my antibiotics for my 4th UTI since surgery yesterday. Never had a UTI in my life till I had the HOLEP procedure. Not sure what is causing the UTI and neither does my urologist or PCP. I am very frustrated to say the least. Can’t travel or do anything without having diapers with me in case I need to change. Not exactly what would be going on 5 months after HOLEP. Most people are back to normal, no incontinence within 6 months. The path I am on, I don’t see that happening. So tired of wearing and buying diapers. Frustrated in Arizona.

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Your comment caught my attention. I had my HoLEP procedure done on Jan 2, 2025 and everything has gone as expected (relative to incontinence which has improved over time). I have very little leakage now. But over the past 4 1/2 months I've had three UTI's and am not sure what is causing it. That's too many antibiotics! I'm trying to get an appointment with my urologist to get to the bottom of this issue. I'll update this comment with any new information as I hope you do too.

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I am still leaking 9 months after surgery. 3 to 5 pads per day. I try to be active. The more time on my feet the more leakage. It’s disgusting. I regret the operation and would love to have my pre op issues.

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Profile picture for leeajac @leeajac

I am still leaking 9 months after surgery. 3 to 5 pads per day. I try to be active. The more time on my feet the more leakage. It’s disgusting. I regret the operation and would love to have my pre op issues.

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I´m 63 days after my HOLEP surgery and I´m living a real nightmare. Burning sensation to pee, urgency and frequency when urinating. I live more in the bathroom than my own life. My life had gone away. I wish I can turn the time back.

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Profile picture for rk1955 @rk1955

Your comment caught my attention. I had my HoLEP procedure done on Jan 2, 2025 and everything has gone as expected (relative to incontinence which has improved over time). I have very little leakage now. But over the past 4 1/2 months I've had three UTI's and am not sure what is causing it. That's too many antibiotics! I'm trying to get an appointment with my urologist to get to the bottom of this issue. I'll update this comment with any new information as I hope you do too.

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I am seeing Dr. Sarath Nath next week. He specializes in infectious diseases. Hoping to find out what is causing my UTI’s. I have now gone over a month without a UTI since the last round of antibiotics. Hoping they don’t come back, but my urine is not clear like it should be. My incontinence is almost gone. No night leakage at all. Mainly leak when I do my pelvic floor exercises and complete my morning 3 mile walk.

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Profile picture for leeajac @leeajac

I am still leaking 9 months after surgery. 3 to 5 pads per day. I try to be active. The more time on my feet the more leakage. It’s disgusting. I regret the operation and would love to have my pre op issues.

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I am now 6 months since surgery and I have no leakage at night. Most leakage is when I do my morning walk and my pelvic floor exercises. Getting really tired of the pelvic floor exercises, but they are finally working. Besides the 4 UTI’s and the incontinence it has been pain free. Hoping my kidneys are functioning properly now. Have an appointment with a Nephrologist later this year and will find out how they are functioning. Next week I see an infectious disease doctor to see what me be causing my UTI’s.

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Profile picture for elcorbs @elcorbs

I am seeing Dr. Sarath Nath next week. He specializes in infectious diseases. Hoping to find out what is causing my UTI’s. I have now gone over a month without a UTI since the last round of antibiotics. Hoping they don’t come back, but my urine is not clear like it should be. My incontinence is almost gone. No night leakage at all. Mainly leak when I do my pelvic floor exercises and complete my morning 3 mile walk.

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I finally got in to see my urologist who performed the HoLEP surgery on me back in January. As I posted I've had three UTI's since then and have been prescribed different antibiotics by my primary care. Unfortunately, my urologist did another scope on my visit (ouch) and determined that my UTI's are probably caused by one of two things; 1) I have some scar tissue at the bladder neck that needs to be removed (by laser) and not allowing me to empty my bladder completely. 2) there may be some leftover tissue in the bladder (from the HoLEP procedure) that may be attracting bacteria like a magnet. So even if the antibiotics kill it off it would still be there and attract more. So I'm scheduled for my surgery on July 18th and will have a catheter in for three days afterwards. She also put on Levofloxacin 750 mg for 14 days (a different antibiotic). I may not have explained everything in physician terms but I hope this helps. I'll update this post after my surgery.

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