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What were your initial bladder cancer symptoms?

Bladder Cancer | Last Active: 2 hours ago | Replies (14)

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@jowilliams1

Thank you, Rose. I'm happy to help however I can. Feel free to ask me anything. I was in the hospital for six nights. I had a full hysterectomy along with the RC and neobladder (which is made from intestine). Mine was robotic and I had 7 incisions. Honestly I don't remember much about the first few days but everyone tells me that's a good thing. Lol. I didn't get up to walk until a couple of days later due to the pain. One of my sons was there to help me. He's a nurse though so he was a great help. I had visitors those first few days but only remember seeing them and not much else so I think I mostly slept from the pain medication. I wasn't great company but they were there to keep my son company.

It definitely took a while to feel better and the neobladder adds to the recovery time (with two catheters that they send you home with). Hopefully your husband's recovery will be easier and quicker. Today marks exactly 6 months since my surgery and I'm feeling great. I'm doing immunotherapy for a year but everything is looking good. I, like your husband, was Stage 2 Muscle invasive. I had one of thirteen nodes be positive but things are going very well and I feel very blessed.
I'm so thankful to feel good again and especially be done with chemo (mine were the same meds as his too!)

I will pray for your husband and for you. Do you know yet if he'll do immunotherapy afterwards?

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Replies to "Thank you, Rose. I'm happy to help however I can. Feel free to ask me anything...."

@jowilliams1 hi again, thank you very much for your help. From what you wrote…I am also glad that you don’t remember the first few days. I hope my husband also sleeps the first few days. Maybe he won’t remember much. The neobladder is a great option. I’m glad you love it. My husband had a catheter after his Turbt and he hated it. So, he didn’t want the neobladder.
Congrats on 6 months out of surgery. Sounds like you’re doing very well 👍My husband hasn’t been told if he’ll have immunotherapy after surgery, yet. Tomorrow, he goes for the cat scan with contrast to see how the cis/gem chemo worked. Praying it worked fine. As you know,
Many cancer cells cloak themselves or want to and immunotherapy kills them.
What is the name of the immunotherapy that you are given? Is it every week? My husband has a port…is it given through there? Also, I’ve read on here with @moose that he recommends immunotherapy after surgery . I just hope it’s not given through a catheter.
Yes, Dwight was exactly the same…Stage 2 muscle invasive.
It’s a blessing that you are feeling great! I hope the same for my husband. He’s been working his bookkeeping/accounting job all through the chemo and he prays to God that he’ll be able to get back 4 weeks after surgery. Not sure if possible. My daughter works as his assistant bookkeeper…so, she’s been helping him.
You must be so happy the surgery is over! God bless you and may God put His healing hands on you and all to …cure and completely heal from all cancers. 🙏🙏🙏🙏IJN amen🙏