Congestive Heart Failure in young people

Posted by brian Jeronimus @brian_j, Dec 14, 2016

My daughter, Heather, passed from Congestive Heart Failure at the age of 25. This was a total shock as she was very healthy and no examinations have ever revealed this possibility. She did have a kidney infection in Dec 2015 and went for diagnosis twice when she had the symptoms. Both times the doctors just passed it off as anxiety. She died in Feb 2015 at Tampa General. The surgeon tried to install VADs on both sides of her heart. When he came to us in the waiting room he said he never saw anything like the scars inside her heart.

I would like to know if anyone else has a story like this. We can only surmize that Heather must have had a dormant virus that was activated by something she took or was exposed to. I wished now we would have had an autopsy done but there may still be no way of finding out how she contracted this evil in her heart.

Interested in more discussions like this? Go to the Heart & Blood Health Support Group.

@hopeful33250 . Thank you a lot. You've helped me a lot. At the moment I'm home, following a non carb diet plan and also eating without salt. Sometimes I feel dizzy. But almost all the time I salivate. I have excess saliva in my mouth always, I guess it's because of the non salt foods. That's what I'm dealing with at the moment.

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@bangel

@hopeful33250 . Thank you a lot. You've helped me a lot. At the moment I'm home, following a non carb diet plan and also eating without salt. Sometimes I feel dizzy. But almost all the time I salivate. I have excess saliva in my mouth always, I guess it's because of the non salt foods. That's what I'm dealing with at the moment.

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@bangel

Hmm, the excess saliva does not sound familiar to me regarding heart problems but may be related to a medication. Will you mention that to your doctor at your next appointment? Chewing gum might help you. I have Parkinson's and extra saliva is common, so gum chewing is recommended, it helps keep you swallowing more frequently. Give it a try and let me know if it works for you.

I look forward to hearing from you again - you are in my thoughts and prayers and I wish you well.

Teresa

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@hopeful33250 . Thank you once again. I can't thank you enough. I will mention it to my doctor next week. I live with my brothers and sometimes I sneak a spoon or two of their food. It's not easy eating without salt or bouillon cubes.

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@bangel

@hopeful33250 . Thank you once again. I can't thank you enough. I will mention it to my doctor next week. I live with my brothers and sometimes I sneak a spoon or two of their food. It's not easy eating without salt or bouillon cubes.

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@bangel
I do understand that! It sounds like you are making progress. Changes happen best with a "small step" approach.
Teresa

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@bangel

@hopeful33250 . Thank you once again. I can't thank you enough. I will mention it to my doctor next week. I live with my brothers and sometimes I sneak a spoon or two of their food. It's not easy eating without salt or bouillon cubes.

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@hopeful33250 I also noticed that sometimes blood drips out of my nose. I told the cardiologist and he acted normal. It scares me.

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@bangel

@hopeful33250 . Thank you once again. I can't thank you enough. I will mention it to my doctor next week. I live with my brothers and sometimes I sneak a spoon or two of their food. It's not easy eating without salt or bouillon cubes.

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Good morning @bangel

Yes, I can understand your being scared. I would mention it again the next time you see your doctor.

If I may ask, is it a lot of blood or just a drip? How often does it happen: daily or every now and then? Sometimes medications for heart problems will thin the blood. Do you know if you are taking a blood thinner? If that is the reason, the doctor might adjust the dose a little, but you should wait and have the doctor make that decision.

When is your next appointment?

Please keep posting with your questions and concerns. I will continue to pray and wish you well.

Teresa

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Teresa.. It is correct about the bleeding problem. I have CAD-LAD stent; on antiplatelet meds, due to dry skin, I
scratched right leg and it started, bruising in few seconds. I notified my cardiologist and the 2 meds., are reduced to
half-dose .. The bruising is controlled. (Like aspirin , clopidogrel 75mg each, from 150mg) It is helpful to know.

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@ramakambhatla

Thanks for your input in this matter!

Teresa

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I am happy to be part of the Mayo clinic connect...I am looking forward to continue to be an active participant..

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@bangel

@hopeful33250 . Thank you once again. I can't thank you enough. I will mention it to my doctor next week. I live with my brothers and sometimes I sneak a spoon or two of their food. It's not easy eating without salt or bouillon cubes.

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@hopeful33250 . My next appointment is on Monday. It doesn't happen Often. It's as if I have a post nasal drip and the mucus or phlegm comes out with blood. It happens maybe once in 3 days. Who can give me a healthy weight loss meal plan? I'm kinda confused..

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