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Is Essential Thrombocythemia a blood disease or cancer?

Blood Cancers & Disorders | Last Active: 6 days ago | Replies (97)
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@ghen

I do have a question. I was just diagnosed with JAK2 ET. Platelets at 790 and will be starting HU and Baby Aspirin after my bone marrow test. I am considered high risk due to my age and symptoms. I am also going to need BCG or some type of localized chemo for non-muscular invasive bladder cancer soon. Has anyone had any experience with this? Along with my stage 3 kidney failure I am starting to feel just tad overwhelmed :/ Thanks for the tips already provided and I know this is a "left field" ask 🙂

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Replies to "I do have a question. I was just diagnosed with JAK2 ET. Platelets at 790 and..."
janemc | @janemc | May 7 5:55am

ghen, I'm so sorry for all you are going through.

Not fair!!!

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Rhonda Gregory | @rjgregory440 | May 7 10:52am

I'm going to be honest, I would send all my healing efforts to the bladder cancer. Take the meds for the ET, because ET isn't life threatening if managed. Then put all your focus and energy to everything your urologic oncologist says. The ET can't be cured but the bladder cancer can. Sending healing prayers your way.

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Colleen Young, Connect Director | @colleenyoung | May 18 4:43pm

@ghen, you may also wish to follow the discussions in the Bladder Cancer support group here: https://connect.mayoclinic.org/group/bladder-cancer/

There are several helpful discussions about BCG, like this one:
- First BCG treatment: What to expect?https://connect.mayoclinic.org/discussion/first-bcg-treatment-what-to-expect/

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