Connect
← Return to Where have you experienced pain due to PMR?H
Discussion
Where have you experienced pain due to PMR?H
Polymyalgia Rheumatica (PMR) | Last Active: Dec 7 5:54pm | Replies (47)Comment receiving replies
How were you diagnosed with GCA?
My rheumatologist was the one that ordered the temporal artery biopsy.
I was on Prednisone 50mg until biopsy came back negative.
Now I’m down to 5 mg, but sedrate still elevated so I’m going to start Kevzara too. Scalp is still tender. Nobody seems to think much about that.
My dermatologist ordered sone type of drops for my scalp. Hasn’t helped.
I saw my eye doc because of a vision disturbance and he continues to monitor me every couple months.
My rheumatologist does not think I have GCA.
Replies to "How were you diagnosed with GCA? My rheumatologist was the one that ordered the temporal artery..."
Connect
@jasharum I’ve just been discharged from hospital with GCA. I am a white, 80 yr old, woman with scandanavian descent.
I had all major markers, inflammation of scalp, hip and knee pain, extreme headaches and jaw claudication. These symptoms would last around three months then move on to a new one.
Then it affected my eyes. I had double vision left eye for less than an hour, made dr appt. Day after Thanksgiving total loss of vision in right eye. Admitted to hospital and immediately started mega doses of prednisone in IV. Four bags 24-hour daily for three days. Vision loss is permanent. Waiting on results of temporal biopsy while on steroid treatment at home.
Previous to GCA I have non hodgins lymphoma which I had two years of chemotherapy every other month. Onchologist remarked sed rate was off and inflammation was high……see her in January .