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How do I get listed for a transplant

Transplants | Last Active: Dec 14, 2016 | Replies (9)

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@davidgenebarnes

I have cirrhosis and they have recommended a transplant. I have both a primary and a gastroenoligist Have had many discussions with them regarding a transply

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Replies to "I have cirrhosis and they have recommended a transplant. I have both a primary and a..."

Hi David, So glad you’ve found our group, welcome! I can share a little bit of information about getting listed for transplant, though the process varies a bit based on what organ you need and the transplant center you choose. Typically the first step is a transplant evaluation, which includes blood work, radiology testing, a bone density test, and testing specific to your organ (urology for kidneys transplant, cardiac testing for heart transplant, etc.). At Mayo Clinic, patients also meet with each member of the transplant team during their evaluation. Here’s an overview of Mayo’s transplant care team and the role each member plays: https://connect.mayoclinic.org/page/transplant/#/!tab=resources-38. If you are overdue for any preventive care during your evaluation, you will be asked to complete that as well.

Once the testing is complete, the team will meet to discuss your case and results. As long as your test results show you are healthy/stable enough to receive a transplant, and you meet other criteria such as having a dedicated caregiver, you would be placed on the waiting list. While this process sounds long and difficult, depending on the organ, the process can typically be completed within a couple of weeks. You mentioned you are in need of a liver transplant, have you considered living donation?

Finally, if it's useful, here is a link to request an appointment at one of our campuses:
http://mayocl.in/1mtmR63

I fit all requirements less one, I work in Phoenix yet my Wife and I live in NorCal so I wouldn't have a caregiver

I’m sorry you are in a situation where you will need to be far from home. A caregiver is a critical part of the success for transplant patients, and is necessary to be placed on the transplant list. The good news is, caregivers can come in many forms. You don’t necessarily need to have a spouse as your caregiver. A caregiver can be anyone willing to stand by you and help you with your needs. Some patients can have multiple caregivers so one person doesn’t have to spend several weeks away from their jobs and families. Our social work team would talk with you about caregiver needs and possible options during your evaluation.

Also, for patients like you who do not live in the area, there are short- and long-term housing accommodations available near Mayo Clinic’s Phoenix campus. The Help in Healing Home is a small village with a community house surrounded by casitas that offers low-cost housing for patients and caregivers. It's designed for individuals requiring a prolonged recovery, where the risk of infection is minimized, in a supportive environment that is close to medical professionals. Here is a link if you're interested: http://www.helpinhealinghome.org/.