Well you are definitely on the right site!
As mentioned by so many of us, i was misdiagnosed for years! Im 57 and active mountain biking, hunting, was a runner till i could not run any longer due to symptoms!
I had two back to back heart failures in 2024 first one was misdiagnosed and was told i had pneumonia, 30 days later heart failure was finally diagnosed and said i had LVOTO by the local cardiologist, thankfully their was another doctor attending to me while i was in the hospital and she recommended me getting another opinion without coming out and saying it.
Went to mayo in dec and diagnosed with HCM with severe lvoto was told septal myectomy was best course of action for me, dr put me on camzyos to get me feeling better and stronger while awaiting surgery.
With in 2 weeks i was feeling better and slowly started riding my bike again
Im averaging 130 miles per month right now, but not pushing it hard, camzyos does have its limitations for sure but at least im out doing things!
Surgery scheduled for June im on my last week of camzyos due to they want me off 4-5 weeks prior to surgery!
Camzyos is a miracle drug
I hope you consider it before surgery:)
Please reach out if yku have questions!