@bilingual84 I'm sorry to hear you've been going through this. I'm glad that my posts/story have given some comfort that you're not alone on your journey.

I've read through so many stories and I think the reality is that everyone's journey has been different.

I look back to a year ago when I was diagnosed and it has been quite the whirlwind year for me. I can only imagine the challenge you've gone through mentally preparing for surgery, only to find out that it was cancelled.

I was personally terrified of Camzyos when originally approached with it as a possible option. I would say that even though I'm not ready yet (and my symptoms don't warrant it), I have warmed up to myosin inhibitors like Camzyos being a potential for me in the future. Take a look at some other posts on the forum about Camzyos--it has helped a lot of people. I even heard that they decreased the amount of echos needed now in the maintenance phase after more study. Camzyos helped @brumasterj become active again as he prepares for surgery--he could probably share more about his experience.

If you aren't receiving the care you need, you may want to consider joining and/or reaching out to HCMA (Hypertrophic Cardiomyopathy Association). They are a great organization with a lot of information and have helped guide me on my patient journey. I believe they do work overseas too so maybe they know of a specialist they can refer you to visit that can help on your side of the world.

You're not alone. Are your symptoms affecting your quality of life right now, or are they still just strange and noticeable, like mine?