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Where have you experienced pain due to PMR?H
Polymyalgia Rheumatica (PMR) | Last Active: Dec 7 5:54pm | Replies (47)Comment receiving replies
Hi @23amy, I had PMR then GCA, not diagnosed for a year. With PMR, I had pain on a scale of 12 out of 10 and stiiffness from the neck down. I felt like the Tin Man in the Wizard of Oz. I lost my appetite and had extreme fatigue. The backs of my knees were inredibly stiff and no amount of exercise helped. If I could manage to use a foam roller, I got some tingling.
With GCA, I had a sore scalp, shooting short pains from my ear to my nose, an itchy torso and dry cough, no appetite, extreme fatigue, and three incidents of visual disturbance. I also had gagging attacks for a while.
Ugh, no fun at all, I consider it the experience of a lifetime.
Replies to "Hi @23amy, I had PMR then GCA, not diagnosed for a year. With PMR, I had..."
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Can you tell me more about your sore scalp?
This was my first symptom. I had a tender scalp about 6 months before flare up of PMR and diagnosed with then. Docs seem to ignore my sore scalp. I asked my hair dresser t check my scalp and she didn't see anything. I had a Right temporal artery biopsy which was negative, however, this doesn't seem to be a very conclusive test. I have head pain off and on. Again, docs don't seem concerned.