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Leiomyosarcoma: What can I expect now?

Sarcoma | Last Active: 6 days ago | Replies (94)

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@jmg1

Was diagnosed with Leiomyosarcoma in the fall of 2021… Mass was on the IVC pushing into the liver. Two surgeries later I was NED for 3 years before it matastasized to the lungs. In the last year, I had three sessions of stereotactic radiation on the lungs and radiation on the IVC in a linac machine (mri machine w/ radiation ) . My Oncologists are working toward containment since it will eventually spread to a point where it can’t be treated. Been told that Surgery is the most effective with LMS .

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Replies to "Was diagnosed with Leiomyosarcoma in the fall of 2021… Mass was on the IVC pushing into..."

Hello jmg1, how are you doing? I was diagnosed in November of 2024 and so far NED. TBH, hearing that yours metastasized after three years sounds disconcerting. Did you feel anything different during those three years? Wishing you many blessings.