Stopping ADT

Does your buddy Tom know his PSA? Does he get scans or just says screw it and what happens, happens?

Yes, my husnand is 51 and im 44 and he was diagnised on February this year, and i feel that im no longer married,this will be the xase forever?

Yes, my husnand is 51 and im 44 and he was diagnised on February this year, and i feel that im no longer married,this will be the xase forever?

Is the biggest issue emotional distance or sexual dysfunction?

A new cancer diagnosis — especially one of advanced-stage cancer — is a huge emotional trauma. Ideally, we reach out to our loved ones for support and grow even closer to them, but some men have been raised to believe they need to be "strong" and deal with everything themselves. That can lead to self-isolating behaviour that hurts and baffles the people who love them most. If that's what's happening with your husband, he may need therapy, but you obviously can't force him to get that. You could also reach out for support yourself and get professional advice on how you can cope. It might be that things will improve after he's had a few months to process the diagnosis.

If the issue is sexual dysfunction, it takes time for the dust to settle, so to speak, but there are ways to continue having sexual relations even on active prostate cancer treatments. It involves a little more care and preparation, so spontaneity won't be the same, but you'll find lots of comments about different approaches and experiences here in the forum.

Best of luck, and do make sure you get support for yourself as well. ❤️

Sorry for your diagnosis. My spinal metastasis was at T3, so we're in similar situations.

If there are only a few spots (oligometastatic), then they can often be radiated individually; Pluvicto and/or chemotherapy are more commonly indicated for many spots (polymetastatic). Note that while PSMA PET is the most-sensitive scan available, it also has a reputation for throwing up false positives, so those extra little spots may or may not be significant

For metastatic prostate cancer like ours, the STAMPEDE study demonstrated the benefit of also radiating the prostate itself within a year of diagnosis, and the TITAN trial showed a *very* strong benefit to starting Apalutamide at the same time as ADT (instead of holding it in reserve until the cancer becomes castrate-resistant).

Both of these were new ideas in 2021 when I was diagnosed (the common practice then was just to treat stage-4 palliatively), but I was lucky to be at a major Canadian cancer centre where they were up on the latest research. I hope this knowledge is more widely disseminated now, but it's still worth getting to a major cancer center/centre of excellence to make sure you're getting the benefit of the latest research, because things are changing fast.

I take turkey tail mushroom tea daily in the evening. I have been off of ADT for 3 1/2 years now and my psa is still dropping (psa went up to 0.15 after quitting ADT). Mushrooms are part of my dinner at least once per week, usually white button mushrooms, but also some locally foraged species. When I was diagnosed my psa was 54.0 , Gleason 8, with local pelvic metastasis.