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Any experience with Post-exertion Malaise (PEM) symptom of Long Covid?

Posted by ann728 @ann728, May 1 6:54am

I am diagnosed with Long Covid and symptoms include fatigue, insomnia, and post exertion malaise (PET). I can’t find much research on PET especially the treatment component. Anyone with suggestions on developing a quality of life with pacing strategies?

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diverdown1 | @diverdown1 | May 5 8:36am
In reply to @bmekdeci "Your comment about feeling "poisoned" is so interesting. I was diagnosed with ME/CFS in 1984 and..." + (show)
Profile picture for bmekdeci @bmekdeci

Your comment about feeling "poisoned" is so interesting. I was diagnosed with ME/CFS in 1984 and had two bouts of Covid in one year followed by LC. Through it all, I have felt like I was poisoned. Other ME/CFS patients have reported this also.

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Here is the link to the Doctor discussing "Adrenal Fatigue". I found it very interesting and could relate. I think it would be a great thing to research PEM, CF, Long COVID and other autoimmune disorders and if it these have any correlation to adrenal fatigue.
https://youtu.be/ViBCHO6FSiI

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diverdown1 | @diverdown1 | May 5 8:37am

I found this to be extremely informative. I believe that the adrenal gland is affected by Long COVID, along with life and stress.
https://youtu.be/ViBCHO6FSiI

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friedrich | @friedrich | May 5 8:38pm
In reply to @diverdown1 "I found this to be extremely informative. I believe that the adrenal gland is affected by..." + (show)
Profile picture for diverdown1 @diverdown1

I found this to be extremely informative. I believe that the adrenal gland is affected by Long COVID, along with life and stress.
https://youtu.be/ViBCHO6FSiI

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To diverdown1 —

Thank you for posting the link to the video about Adrenal Gland function and disfunction. The presentation was easy to follow.

— friedrich

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doug8576 | @doug8576 | May 6 1:16pm
In reply to @bestseller2025 "Hi, I have this condition as well. I saw a long COVID Dr., last week and..." + (show)
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Hi, I have this condition as well. I saw a long COVID Dr., last week and I will begin rehab to address this issue along with heavy leg syndrome. I will post how that goes in the next several weeks. It has been the most troublesome outcome for me. I developed neuropathy as a result of long COVID as well. I think it's interesting that I never lost my sense of taste or smell. It has been about nerves in my body and inflammation issues.

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Apparently the COVID virus damages the nervous system--especially the autonomic nervous system. So many of the symptoms are apparently related to that damage, which varies from person to person. Good luck!

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kat0922 | @kat0922 | May 6 9:02pm
In reply to @ann728 "Thank you for your response. I am curious, how does the ADHD medication help with energy?..." + (show)
Profile picture for ann728 @ann728

Thank you for your response. I am curious, how does the ADHD medication help with energy? I will definitely check into acupuncture. I am working diligently to figure out an activity level that allows me to manage my life without a crash. The last crash was tough….
Thank you again, you have offered great suggestions for me to consider with my physician.

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ADHD medication is a stimulant, that’s why they are controlled. So it can give a boost of energy in addition to helping with executive function.

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