Any experience with Post-exertion Malaise (PEM) symptom of Long Covid?

Posted by ann728 @ann728, May 1 6:54am

I am diagnosed with Long Covid and symptoms include fatigue, insomnia, and post exertion malaise (PET). I can’t find much research on PET especially the treatment component. Anyone with suggestions on developing a quality of life with pacing strategies?

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@bmekdeci

Your comment about feeling "poisoned" is so interesting. I was diagnosed with ME/CFS in 1984 and had two bouts of Covid in one year followed by LC. Through it all, I have felt like I was poisoned. Other ME/CFS patients have reported this also.

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Here is the link to the Doctor discussing "Adrenal Fatigue". I found it very interesting and could relate. I think it would be a great thing to research PEM, CF, Long COVID and other autoimmune disorders and if it these have any correlation to adrenal fatigue.
https://youtu.be/ViBCHO6FSiI?si=r5Vslyu61P3KV9yk

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I found this to be extremely informative. I believe that the adrenal gland is affected by Long COVID, along with life and stress.
https://youtu.be/ViBCHO6FSiI?si=r5Vslyu61P3KV9yk

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@diverdown1

I found this to be extremely informative. I believe that the adrenal gland is affected by Long COVID, along with life and stress.
https://youtu.be/ViBCHO6FSiI?si=r5Vslyu61P3KV9yk

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To diverdown1 —

Thank you for posting the link to the video about Adrenal Gland function and disfunction. The presentation was easy to follow.

— friedrich

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@bestseller2025

Hi, I have this condition as well. I saw a long COVID Dr., last week and I will begin rehab to address this issue along with heavy leg syndrome. I will post how that goes in the next several weeks. It has been the most troublesome outcome for me. I developed neuropathy as a result of long COVID as well. I think it's interesting that I never lost my sense of taste or smell. It has been about nerves in my body and inflammation issues.

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Apparently the COVID virus damages the nervous system--especially the autonomic nervous system. So many of the symptoms are apparently related to that damage, which varies from person to person. Good luck!

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@ann728

Thank you for your response. I am curious, how does the ADHD medication help with energy? I will definitely check into acupuncture. I am working diligently to figure out an activity level that allows me to manage my life without a crash. The last crash was tough….
Thank you again, you have offered great suggestions for me to consider with my physician.

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ADHD medication is a stimulant, that’s why they are controlled. So it can give a boost of energy in addition to helping with executive function.

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