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marilyns22 avatar

diagnosed with Mobile cecum and redundant colon

Digestive Health | Last Active: Jul 2 11:38am | Replies (20)

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Have you gotten more info since last post? This is my first post and I'm sorry for what you have been through.
I was looking to see if anyone else had mobile cecum and if they had surgery for it. I've read about cecopexy (where are cecum is surgically attached to where it should be). But I never see the name of a surgeon or what the patient experienced. Did your insurance company ever hear anything from Cleveland Clinic? I didn't know insurance companies would ask for second opinions like that or maybe they were trying to help you be seen at the Cleveland Clinic?
I hope things are better and I really wish you would post an update.
I see online that people got this fixed when they have volvulus (twisting) so surgery is life and death emergency. Whatever the cause of your problem, I hope it is better.

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Replies to "Have you gotten more info since last post? This is my first post and I'm sorry..."

Still waiting to see surgeon. appointment is May 20th. And havent heard anything back from the Cleveland Clinic yet either. Still diarrhea everyday. Thank you so much for asking!

@member8675309 Yes, I am one of those people that had to have emergency surgery for a “twisted bowel”. Also called a cecal volvulus. Funny thing is, I never had any symptoms until 6 hours before we decided it must be appendicitis and went to the er. They did a CT scan and prepped me for surgery immediately. If a ‘mobile cecum’ can indeed become twisted, which stops all movement in the colon and eventually kills you, I would think they would want to do something before it becomes critical. I had to have open surgery because the cecum had already become too large to remove laparoscopocally. And that was after only 6 hours of symptoms. I had never had any digestive problems before and had a normal bowel movement 2 days before. Hope this helps!